Schedule: Week of November 19-21, 2012

Monday [Radiation Therapy – Day 16]:

7:10am-8:05am Drive from Home to RTher
8:05am-8:15am Waiting for RTher
8:15am-8:25am RTher
8:25am-8:40am Waiting for appointment with ROnc
8:40am-9:00am Appointment with ROnc
9:00am-10:00am PTher
10:00am-10:10am Post RTher-ablutions [in other words spreading boob goop]

[Yes, you are reading correctly – I had radiation therapy, a doctor’s visit And physical therapy, All Before going to work. :)]

10:10am-10:25am Drive from RTher to Work
10:30am-1:15pm Work
1:15pm-2:15pm Lunch

[I’m pretty sad about this Hostess thing – not only because I’m tired of upper management in companies being greedy, bankrupting their companies in the first place, And Then blaming it on the workers who put all that stolen money in their pockets!  And Then of course, a world without Twinkies and Ding Dongs would make me sad.  Are they healthy to eat?  No.  Is it okay to eat them once in a while?  Yes, I think it is.  Are they a reminder of my childhood I would be sorry to see disappear from the earth?  Yes again.

It has been said (most likely correctly) that another company will buy up the assets of the company (the brands and their accompanying product recipes – at least where the Hostess brand is concerned), so that these bad-for-you but occasionally good-for-your-nostalgic-soul-and-sweet-tooth cakes may indeed survive their original maker’s demise.  Just in case they Don’t get sold and survive, I was going on a hunt for ’em in my local neighborhood – namely my closest (within 5 miles or so of work) Hostess Outlet.

Long unnecessary story shorter than it could be – I came away with two bags of powdered sugar Donettes, but there were no Twinkies or Ding Dongs to be had at all in the outlet (good thing I have a box of each coming from Amazon – let’s not talk price – we definitely achieved the ‘silly’ level, but Did manage to stop short of ‘crazy,’ ‘ridiculous,’ and my personal favorite ‘batshit insane.’)  I’m low on time and energy in general these days (and interest too – a touch of depression anyone?  Yeah, I’m being treated for that – it’s cool.), but I’m thinking that was a lunch hour well-spent.]

2:15pm-5:30pm Work
5:30pm-5:45pm Drive from Work to Acupuncture
5:50pm-6:05pm Get blood drawn for lab work

[Please see “Seriously, this Woman Knows Her Way Around a Vein – I’m Naming Names Again.”]

6:05pm-7:00pm Acupuncture
7:00pm-7:45pm Drive from Acupuncture to Home

[Including a quick drive-through of a pharmacy to drop off the Rx for pain meds I was grudgingly given this morning.]

Tuesday [Radiation Therapy – Day 17]:

Hm, I completely did Not (obviously) keep track of this day, and since this is actually being posted Monday November 26, 2012, I’m gonna let this one go…

Wednesday [Radiation Therapy – Day 18]:

[Otherwise known as (effectively) Friday this week, with Thursday and Friday off from work.  :)]

7:05am-8:00am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:20am Post-RTher ablutions
8:20am-8:35am Chatting with “Georgia” at the main lobby reception desk at the RTher facility
8:35am-8:45am Driving from RTher to Work
8:45am-1:00pm Work
1:00pm-1:30pm Lunch

[On days before holiday weekends, my company intends to close early.  To that end we’re asked to take short lunches.]

1:30pm-3:00pm Work

[Yup, we did close.  Yay!  (You see, I work in a fairly small shop, and the policy is ‘we all go or we all stay,’ so work that has be done by any one of a handful of us can scuttle an early day for all of us.  I’ve been both the scuttler and a victim of someone else’s scuttling in the past – but not today!)]

3:00pm-4:15pm Drive from Work to Home

Additional Tasks Accomplished This Week:

– blogged
– RSVP’d to two Thanksgiving Dinner invitations – one yes and one no
– indulged my returning knitting habit by buying more yarn for the stash (yeah, I know but it’s a thing with us crafters)
– that’s about it – it was a short week, ya know?

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

SNL (1975-1980, 1985-Present): November 22-25, 2012

Who gets the reference?

Thursday:

– coffee
– reading in bed
– breffast with Hubby
– napping
– off to Thanksgiving Dinner

[At the house of one of Mom’s best friends since they were in high school, whose house I grew up in with her 3 daughters as much as I did my own – therefore kinda my second mom growing up.  Only the eldest of 2ndMom’s daughters was at dinner.  There was an interesting moment in the kitchen as we were finishing the dishes for serving: 2ndMom is an 18-year breast cancer survivor, so we were casually sharing tumor size, location, stage, treatments, side effects to treatments – you know, generally the basic get-to-know-you conversation for those of us in the club.  Her daughter said,” We don’t have to compare.”  (I think all that deeper than surface conversation was making her uncomfortable.)  Without even thinking I said, “You don’t have to be here for it, but yes, we do.”

Another thing cancer has actually brought me is a new aspect to my relationship with 2ndMom.  Our relationship first changed when I grew up and we started to interact with each other as adults instead of adult & child.  I appreciated her more then as I could see more than just the surface aspects of her (which were not quite as overtly warm as I was used to).  Now, with the breast cancer, the relationship has changed again, become closer again.  We share something that we both hope her daughters never know about like we do.]

Friday:

– coffee
– reading in bed
– knitting in bed while Hubby naps
– quick something to eat
– napping while Hubby works on continuing to put our garage back together from when it had to be completely emptied just a month before my diagnosis because our garage doors would not function anymore, so needed to be replaced – thereby requiring us to completely empty the garage 12-15 feet back from the doors (including overhead racks the full width of both the double and single doors, and fully loaded shelves on each side wall from front to back, including everything those storage systems carried – fun)
– vaping with Hubby

[We happened to be watching a food show extolling the virtues of burgers around the nation.  As we had napped on opposite schedules, I doubt either of us had eaten much that day (we prefer to eat together, and both sometimes try to wait for the other) so we were both hungry.  Obviously we were having burgers for dinner.]

– dropping off dry cleaning with Hubby
– picking up burgers & fries for dinner with Hubby from a delicious local chain

[I know tomorrow is Small Business Saturday, but we practiced that today.]

– eating yummy dinner while watching Fringe marathon

Saturday:

– coffee (hm, pattern?  Oh yeah!)
– checking FB, surfing the net for chunky yarn hat knitting patterns
– blogging

– buying/downloading audiobooks
– emptied/loaded dishwasher
– did dishes
– cleaned out fridge
– ate lunch cooked by Hubby

[leftover Costco chicken breast/thigh/leg, shredded
3/4 can of green beans
1/4 cup chopped onions
3/4 can of corn
whole can of chopped tomatoes with juice

all sauteed in schmaltz from the cut-up chicken
with garlic powder
and served over brown rice with a sprinkling of parmesan cheese

Oh man, was it good!]

– blogged

– upgraded computer to Mountain Lion

[And it survived!  Yay!  Now I can re-engage Time Machine – my poor ‘puter hasn’t been backed up in over a month and I don’t like that at all.  So tonight it’ll do its first new backup.]

– blogged
– called Mom
– massage in my living room by Randy

[I lay there when we were done and it was a magical moment – I didn’t hurt at all!]

Sunday:

– blogging
– handling collected e-mail (filing, dealing with, etc.)
– brunch w/ Hubby at home while watching the Brazilian GP 2012

[Brunch was:

– smoked sausage
– parmesan and garlic coated potato wedges rescued from the freezer
– toast
– eggs scrambled with onions, cheese and basil

I’m not quite sure how we did it.  After a quick outing early Friday evening to drop off dry cleaning and pick up the hamburgers & fries that had to be our dinner, Hubby and I didn’t leave the house ’til Monday morning.  We also hadn’t done a serious grocery store run in quite a while, resulting in the fact that we kept running out of basic supplies, like, well, milk, in addition to other things we Always have around.  Yet, somehow we kept finding ways to have delicious, plentiful and dare-I-say-it relatively healthy meals all weekend!]

– vaping and hanging out with Hubby some more, while dealing with more email management

[One of my email accounts went from 800+ in my inbox (I Hate Not having empty inboxes) to 26!]

– actively, consciously and mutually (although I wouldn’t be surprised if Hubby gave it up to keep me happy) bailing on our previous notion of hitting the grocery store and filling the larder with all of Our Basics we were out of
– dinner w/ Hubby (fresh, premade shepherd’s pie w/ brussel sprouts in a light butter sauce) while watching the latest Castle

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Schedule: Week of November 12-16, 2012

Monday [Radiation Therapy – Day 11]:

7:00am-8:00am Drive from Home to RTher

[With 1 stop @ Starbucks because it’s Veteran’s Day (which I don’t get off from work), so traffic is holiday-light, so I got nearly to RTher by 7:40am and stopped to get myself a treat (yeah, I know, quit counting, k?) on the way for no other reason than I had time.]

8:05am-8:15am RTher
8:15am-8:30am Appointment with ROnc
8:30am-9:05am PTher
9:10am-9:25am Drive from PTher to Work
9:30am-1:30pm Work
1:30pm-2:30pm Lunch
2:30pm-5:30pm Work
5:30pm-6:35pm Drive from Work to Home

Tuesday [Radiation Therapy – Day 12]:

7:08am-8:15am Drive from Home to RTher
8:25am-8:35am RTher
8:40am-9:05am Post-RTher ablutions

[Walked back into the female changing room after RTher and found one of the private rooms open, with my new friend “Dana” doing her post-RTher ablutions, so I slipped into the room with her (so we could share the mirror) and proceeded to chat and do our stuff together – sharing with each other what we’re each using and having a lovely time actually.  As wonderful as my entire support system is (And They Are!), there is something incredibly freeing and relaxing about being around someone (even if, to other people, they would seem a stranger) who is going through what you are – there is an instant intimacy and community like no other.  So we slathered boob goop on ourselves and chatted, I shared this blog and my contact details with her.  She said she’d read my blog and gimme a call to give me her contact info.  I hope she does – I had to get to work and she had to get upstairs for something so we couldn’t talk for but a few minutes – but I really like her.  So “Dana,” if you’re reading this like you said you were gonna, gimme a call.  :)]

9:10am-9:25am Drive from RTher to Work

[With 1 stop to put gas in the car]

9:30am-1:30pm Work
1:30pm-2:45pm Lunch

[No good deed goes unpunished.  I had 3 sweaters I had bought and after getting them home decided they didn’t fit well enough to keep.  Every year my company finds a family who doesn’t have all of what they need and helps them out.  One of the things this year’s family asked for was food.  I figured I’d take the sweaters back and use that money to buy food for this year’s family.  I can do that in an hour, right?  Wrong.

So after daring to take a few minutes this morning to talk to someone who, more than almost anybody else in My world right now, knows Exactly what I’m going through, I’m all of a sudden (with yesterday’s PTher) an hour down on work time this week.  And now after doing my good deed (despite giving myself an out not to do Anything for Anyone this year – oh, and I’m sticking by that for my own family – won’t they be surprised?), I’m an hour and 15 minutes down on work time.

So much for a foot massage Friday at lunch, eh?]

2:45pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Support Group
7:00-8:35pm Support Group
8:35pm-9:15pm Drive from Support Group to Home

Wednesday [Radiation Therapy – Day 13]:

7:05am-8:20am Drive from Home to RTher
8:30am-8:45am Drive from RTher to Work

[Wait, aren’t we missing an entry in there?  Yes, yes we are.  As it turns out the entire computer system for the hospital, and by extension, the Cancer Center went down at 4:30am this morning.  It still wasn’t up when I walked in for RTher this morning, and of course since the medical records are all electronic, they couldn’t even call me to save me driving an hour an 15 minutes for nothing.

And if the system comes up, it takes at least 45 minutes for the machine to warm up, Then they have to go through their daily calibration (or whatever they call it), so who knows if I’m getting my treatment today or not.  So I was originally going to have my last treatment on December 12th, but since my facility is closed on Thanksgiving and the day after, we’re now taking two days on the end of my treatment.  And if I don’t get treatment today, then we’ll add this day onto the end of my treatment.  And then if I (yes, I, not my doctors, it’s not there body – I’m going to get two of their opinions and then make the decision myself) decide not to have the Boost at the end, then that adds another 7 treatments or so on the end, so I’ll be lucky to be done with this by Christmas.

And I have no idea when they’ll be able to treat me today, which means as much energy as I’ve put into making this as easy on my employer as possible, I now have to tell them I need to wait by the phone and bail on them immediately if it rings.  They’ll understand, but it pisses me off.  I simply Do Not have time in my day for it to get rearranged like this.  Please see Rule #3.

Happy Hump Day!]

 8:45am-1:00pm Work

[Got a call at 9:15am from one of my guys.  Apparently the machine is back up and he wants to know if I want to come in for my treatment today.  I ask him when.  He says he has 1:15pm, 1:30pm . . . I take the 1:15 spot, since that actually does Not need an announcement at work – I’ll just take my usual lunch hour and use it to go get treatment instead of…

…what I was going to do was make a deposit to my HSA account to get the tax breaks of maxing out my HSA deposit for this year and be able to pay some of the medical providers who’ve been sending me bills.  But now that will have to wait for another day.  Doesn’t sound like a big deal, I know.  My life feels so full right now, tho, that getting rearranged is more of a big deal than it might be for, well, you.

And I’m doing things on my lunch hour sort of because I am so tired these days, in that A) there’s no way I’m doing it on the way home, I’m completely done by the end of my work day,  so this way Some of it gets done, and B) I’m afraid that if I stopped and rested at lunch I may not get going again for the afternoon, so this way I have something to keep me going while I plow through my day in one fell swoop, as they say.]

1:00pm-1:20pm Drive from Work to RTher
1:20pm-1:30pm RTher
1:30pm-1:35pm Post-RTher ablutions
1:35pm-1:45pm Drive from RTher to Work
1:45pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Thursday [Radiation Therapy – Day 14]:

7:05am-8:05am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:20am Post-RTher ablutions
8:20am-8:30am Drive from RTher to Work
8:30am-1:00pm Work
1:00pm-2:00pm Lunch

[Doing today what I wanted to do yesterday at lunch – depositing some money into a couple of accounts so bills can be paid – and they can leave me the hell alone already!  :)]

2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday [Radiation Therapy – Day 15]:

Additional Tasks Accomplished This Week:

– blogged
– took a hat I had knitted for myself and gave it to one of the supervisors at my office to send to her sister, who has finished chemo and radiation, but whose home got slammed in Sandy – at least last week she was wearing a hat (‘cuz her hair hasn’t grown back yet from chemo), under multiple blankets and eating chips for dinner ‘cuz she had no power or heat – ‘cuz I do have hair, power and heat at home, and the means to cook a hot dinner.
– managed Not to run out of gas in the car (it was a pretty close call one day)
– emailed with my cousin on whether I will or will not be coming to her Thanksgiving shindig next week.  It makes me sad that I had to decline, but with Hubby maybe having to work over TG weekend (yeah, crappy, but oh well), and me literally not knowing how I’m going to feel day-to-day right now, since she needs to know for sure by Tuesday noon to plan her party, I had to decline as I honestly can’t guarantee knowing by then if either Hubby or me will be able to/up to doing Thursday.  So Hubby and me are on our own for Turkey Day, but it’s not the first time (prolly won’t be the last) and we’re okay with that.  We’ll either find somewhere else to go, do our own little thing just the two of us, or just hang out together and have peanut butter & jelly sandwiches.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

SNL (1975-1980, 1985-Present): November 17-18, 2012

Who gets the reference?

Saturday:

– coffee
– vaping with Hubby, hanging out, feeling not too bad
– delicious brunch cooked by Hubby
– napping – yep, 3 hours . . . gone
– knitting
– dinner

Sunday:

– coffee
– did dishes, ran dishwasher
– brunch, cooked by me

[I actually had enough energy to accomplish something meaningful – you know, like feeding myself and Hubby from-scratch cooked food – sausage patties & toad-in-the-hole for Hubby, and well my first course was fried eggs and sausage patties, otherwise known as the appetizer to “something to have Apple Blossom Honey or maple syrup on.”  Yep, again.  More buttered waffles – this time one with Apple Blossom Honey and one with Maple Syrup.  Uh-huh, I went there, I did.]

– checking out FB

[So, a friend of mine posted something on FB about medical “hemp.”  And a friend of his commented something about (I’m paraphrasing here) a doctor friend of hers who practices here in the US, who advises his cancer patients going through radiation (on the QT mind you) to get some medical “hemp” to help with side effects during this type of treatment.  Reading that reminded me of something – namely that when first diagnosed, I went out and got myself a “green card” figuring I had no idea if I would be interested in using “hemp” at any point during my treatment, but if I did then the whole getting the card business would be taken care of.

And a week  later or so, I found myself with 15 minutes or so to spare before, well at that time a chiropractic appointment for injuries suffered in a car accident the week before my cancer diagnosis (it’s been a great year), and in front of a collective, so I decided to stop in.

Bottom line, after reading this post & comment on FB, I realized I had something useful in the garage fridge.  One of the forms I had availed myself of is a tincture.  Now, from previous experience with varieties of “hemp,” I know I’m a lightweight, and throughout my life it has always made me nauseous.  So, in previous experiments, I’ve found edibles easier to balance desired effects vs. unwanted effects.

Well, it’s Sunday afternoon, I’m hurting, what the hell, let’s experiment.  Being cautious I started with one drop – yes, one drop of tincture.  And took half a pain pill (5).]

– read in bed, dozed, relaxed – decided after a couple hours of this I had to get up and do something or I wouldn’t sleep that night and that would be bad – but I didn’t hurt anymore 🙂
– did some laundry
– dinner with Hubby

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

SNL (1975-1980, 1985-Present): November 10-11, 2012

Who gets the reference?

Saturday:

– coffee
– napping

[When I say napping, I was back asleep by 7am and slept until 12:30 pm (after sleeping from 10pm Friday night to 6am Saturday morning).  Now, I’m usually a two-hour napper (the 20-minute power nap never did anything for me), but 5-1/2 hours?  I think the fatigue is here, at least for the moment.  So far, I’m making it through my workweek before collapsing.  We’ll see how long I can continue to do that before I can’t.]

– lunch
– watching TV off DVR in bed
Ways for dinner (we do a 4-way in our house) with Gold Star Chili while watching something off the DVR
– then back up to bed

Sunday:

– coffee
– watching Firefly marathon on TV in bed (not sure I caught the very beginning of it this morning – might hafta start over at the very begining on Netflix through my Apple TV)
– brunch (picked up by Hubby and brought home to me from our local Denny’s)

[Otherwise known as “something to have Apple Blossom Honey or maple syrup on.”  This seems to be a comfort-food weekend thing.  But, I figure if I’m not gaining weight (which, after quitting smoking CFT 76 days ago, that I’m not is a miracle in itself), I figure my body can use the extra calories to repair the damage caused by the necessary radiation therapy.  So when Hubby asked what I wanted for breakfast, my answer was one of the following three items: waffle, pancake, french toast – and some protein to go with it.]

– blogging
– made cranberry sauce

[Yup, homemade, from scratch, and all that stuff.  Seriously this stuff is easy, put it in a pot, cook for 45 minutes, stirring & mashing up every 15 or so, then cool & eat.  The most time-consuming part is cutting up the oranges.]

– watching more Firefly marathon on TV with Hubby
– dinner

[So, when I got the stuff to make cranberry sauce, I also picked up a turkey breast and a couple turkey thighs.  I made a triple batch of sauce this year because a couple months ago I had 1 cup left over from last year’s batch which got defrosted and eaten over my morning yogurt on two mornings and it was damn good!  So I figured cranberry sauce is Not just for Thanksgiving (and neither is a turkey sammich with mayo on one side and cranberry sauce on the other Only for the Day After), so I made a triple batch and bought some turkey to go with it.  Hubby picked up that gauntlet and made the yummiest dinner: turkey, garlic mashed potatoes (nuked from frozen), brussel sprouts (also nuked from frozen), and pan-drippings gravy, with my cranberry sauce.  Happy tummy!]

So things were going pretty well, I wasn’t really feeling caught up on rest, but Monday morning was nearly nigh and I’d go for it anyway, until…

I called my Dad (like I do with both folks every – or as nearly as possible – day): See “My Last Anchor to Childhood – And My First Ativan.”

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Schedule: Week of November 5-9, 2012

Monday [Radiation Therapy – Day 6]:

7:10am-8:25am Drive from Home to RTher

[fucking traffic! – being late on Monday morning is a shitty way to start the week]

8:25am-8:35am RTher
8:40am-9:00am Weekly visit with ROnc
9:05am-9:20am Drive from RTher to Work
9:20am-1:00pm Work
1:00pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-5:45pm Drive from Work to Acupuncture
5:55pm-7:00pm Acupuncture
7:00pm-7:45p Drive from Acupuncture to Home

Tuesday [Radiation Therapy – Day 7]:

7:00am-8:20am Drive from Home to RTher

[fucking traffic, again! – because starting my day off stressed for more than an hour is so conducive to being healthy, Not!]

8:25am-8:35am RTher
8:35am-8:45am Post-RTher ablutions

[first aid cream on the nipple scar, scar cream on all 5 surgical scars, super-moisturizing cream on the whole boob – plus massage to minimize tissue damage, deodorant – no antiperspirant for me during radiation (aluminum on the skin interferes with the killing of the cells, dontcha know?), and no creams or goops of any kind for 4 hours before radiation treatment (again, interferes with that killing goal)]

8:45am-9:00am Drive from RTher to Work
9:00am-1:30pm Work
1:30pm-2:30pm Lunch

[Acapulco: Carnitas]

2:30pm-530pm Work
5:30pm-6:35pm Drive from Work to Polling Place

[with 1 stop to get gas]

6:35pm-6:40pm Vote
6:40pm-6:45pm Drive from Polling Place to Home

Wednesday [Radiation Therapy – Day 8]:

7:05am-8:05am Drive from Home to RTher
8:10am-8:30am Wait for RTher/Meet social worker

[it seems the machine wasn’t behaving this morning (it is tested every morning I guess before the first patient – me – is put on it) and it took a few minutes for someone to beat it into submission]

8:30am-8:40am RTher
8:40am-8:45am Post-RTher ablutions
8:45am-9:05am Drive from RTher to Work
9:05am-1:00pm Work
1:00pm-2:00pm Lunch

[Marie Callendars: Chicken w/ artichokes & mushrooms over pasta.

Are you noticing a pattern here?  Yeah, me too.  And I thought I was doing so well Not stopping at Starbucks every morning on my way from RTher to Work.  The good news is that lunch each of the last two days has yielded enough leftovers for two more full lunches, and I do eat leftovers (Hubby doesn’t), so if I can remember to eat that for lunch tomorrow and Friday, I’ll spend no more money on that, waste no food, and I can eat that at my desk if I want so maybe I’ll get my ass out of my work chair and back up walking again.

That’s something else that has changed (and not for the better this week).  I’m starting to fall into the non-smoker’s (72d CFT today!) bad habit of Not getting up for morning and afternoon breaks since my body is no longer sending up a cry for it’s fix every 2 waking hours.  Okay, starting this afternoon, I resume my twice daily walk around my work block).]

2:00pm-5:30pm Work
5:30pm-6:35pm Drive from Work to Home

[Up from 3:00am-4:00am: woken up by animal noises outside my open window – potty, back in bed, nose congested, use polysporin to moisturize/decongest, back in bed, drifting off as more animal noises outside, close window, pick up Kindle – next thing I know I’m hitting snooze, again, on the alarm.]

Thursday [Radiation Therapy – Day 9]:

7:00am-8:10am Drive from Home to RTher

[Big shout out to Hubby (he won’t see this, I don’t think he reads me – he figures he sees me every day, he gets all the info he needs about how this is going directly from me, and the occasional medical event he attends – meeting new doctors, surgeries, first new treatment of any kind – although he is willing to come to Any and Every medical event I Want him to come to) – last night I was complaining about the stress of trying to make it to RTher every day (comparing it to the stress of getting to a former job on time when it was a 2-hour commute – yes, that is Not a typo – One-Way,  in good weather – longer in bad weather), and this morning (as he goes to work before me and heads to just the city before the one where I work in the exact same direction/route as me), he texts me with a traffic & weather report so I know what I’m in for on my way!]

8:10am-8:20am RTher
8:20am-8:25am Gooping up/applying deodorant
8:30am-8:45am Driving from RTher to Work
8:45am-1:00pm Work
1:00pm-2:00pm Lunch

[Trip to Whole Foods: A cousin of mine (no, not the same one as has a birthday this week) posted a smoothie photo that had a blurry bottle of Synergy Kombucha in the background, so we had a little convo about that in the comments for the post, and it reminded me that I love that stuff and hadn’t had any in way too long, so I’m using my fabulous one-hour lunch today to go pick some up (along with the tomatoes and green onions that Hubby did Not pick up at the market the other night when getting “salad stuff” – okay, he’s amazing but not perfect – but then neither am I , so that’s okay.]

2:00pm-5:30pm Work
5:30pm-6:45pm Drive from Work to Home

[It’s only a little rain, people, not That big a deal!]

Friday [Radiation Therapy – Day 10]:

7:00am-8:00am Drive from Home to RTher

[Back to a regular Friday light traffic patter, with time for my weekly (yeah, I know, but that’s my story and I’m sticking to it) Starbucks treat stop – but this time I was involved in conversation with someone and forgot to pick up the new Starbucks/iTunes Freebie cards – sorry work-peeps!]

8:00am-8:10am Waiting for machine calibration – met and chatted with another patient “Dana” until my machine was ready for me
8:10am-8:20am RTher
8:20am-8:25am Post-RTher ablutions
8:30am-8:45am Drive from RTher to Work
8:45am-1:00pm Work
1:00pm-2:30pm Lunch

[I get an extra-long one today ‘cuz after building in ‘life is screwed up’ time into when I scheduled my RTher, I now end up with extra already-worked time on Fridays sometimes, and I know work doesn’t really want me taking off early (tho that’s what I would prefer to do), so I’m just tacking it onto lunch instead.]

2:30pm-5:30pm Work
5:4opm-6:45pm Drive from Work to Home

[Yeah, got caught up in reading my, well, personal email at the end of my workday and ended up staying 10 minutes late!

Additional Tasks Accomplished This Week:

– walked at least 20 minutes um, some days
– blogged
– VOTED!
– wished my cousin Happy Birthday on Facebook
– paid some bills
– cleaned up bedroom, put clothes away
– gave $100 to a fund for the family of a co-worker of Hubby’s who died on the job this week  😦
– remembered to write check for every other week housecleaner And actually leave it at home for her

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

SNL (1975-1980, 1985-Present): November 3-4, 2012

Who gets the reference?

Saturday:

– coffee
– reading in bed
– pedicure/nail fill @ the Nail Forum – Porter Ranch
– underarm waxing – wasn’t sure it was a good idea, but decided to go for it because I did not want to shave (I figured more risk of doing damage shaving than by an experienced aesthetician doing a quick wax – which would also last nearly the duration of my RTher).
– reading in bed
– quickie dinner @ home with Hubby

Sunday:

– coffee
vaping with Hubby
– napping
– brunch

Otherwise known as “something to have Apple Blossom Honey on.”  I woke up this morning wanting some of the apple blossom honey we picked up in Oak Glen last weekend.  I woke up from my nap to find Hubby in his room . . .

[Yes, we do not share a bedroom.  We haven’t for oh, 15 years or so?  It’s partly because he snores, and partly due to changing and incompatible work schedules over the years.  Don’t worry, when we wanna play, we have a whole house to do it in, plus two beds we’re not afraid to mess up ‘cuz they both get slept in every night.  🙂  And, Hubby having his own room serves us in another way than just letting us both sleep – it lets him deal with my need for a tidy, sparely decorated house – by giving him a place Not to have to keep things cleaned up to my standards,]

So, anyway , earlier this morning while we were downstairs hanging out I was trying to find something to have honey on for breffast, asking if he felt like eating (and well, making) pancakes – did we have a pour-liquid-and-shake Biscuit jug (I didn’t want either of us to spend half the day cooking)?  But that didn’t work out, and I Finally felt like if I lay down I could Actually Nap!  So I did that, and woke up to find Hubby having cereal and  went to find myself a carrier for the honey I wanted.  Turns out (after eating a breakfast of actual food with protein and stuff) the carrier of the day was a buttered waffle, previously frozen and now toasted golden brown and warm.  🙂  Then I wrote this post, and now I think I’ll go have the other waffle left in the bag in the box in the freezer, toasted with butter and Apple Blossom Honey, of course. . .

– blogging
– breffast #2 = waffle #2
– more blogging
– eating yummy dinner (pork roast, broccoli, potatoes) cooked by Hubby
– watching tv off the DVR with Hubby (Castle, Once Upon a Time)

Schedule: Week of October 29-November 2, 2012

Monday [Times after 8:30am approximate – I was out of my routine & not keeping strict track] [Radiation Therapy – Day 1]:

7:30am-8:30am Drive from Home to Disney Family Cancer Center to straighten this out before my appointment at 11:30am [Meet Hubby and Mom to back me up/help me out]
8:30am-9:00am Find the CEO of St. Joseph’s Hospital – Request meeting with same – Get escorted to his office

9:00am-9:10am Throw Dr. Rex Hoffman under the bus with the CEO of the hospital at which he works
9:15am-10:15am Eat breffast w/ Mom & Hubby in the hospital cafeteria – nearly free with coupons from the hospital CEO [wasn’t that nice of him?]
10:30am-11:15am Visit with Nurse Navigator [to make sure I was still welcome in her office, since I bcc’d her on the email in this post – and I was  🙂 – nice chance to catch up] [As I’m walking across the way to the other building I see Dad driving up to join my backup posse]
11:15am-11:45am Wait for my 11:30am first radiation therapy appointment to begin [Dr. Hoffman being the only ROnc in the office today, my care will be changed to another doctor tomorrow]
11:45am-12:30pm First Radiation Therapy appt [w/ Mom, Dad and Hubby as backup]
12:30pm-2:30pm Drive Hubby to his truck [parked and left at a local Starbucks this am to save 1 parking fee at doctor’s appointment] – went w/ Hubby in his truck to a vape store so he could test some flavors [leaving my car in the very same Starbucks parking lot ‘cuz it had already been a tough day and I just wanted to be with him for now] – going back to pick up my car
2:30pm-3:30pm Drive from Starbucks to Home [with 1 stop at a local deli for chicken noodle soup w/ a dry matzo ball on the side – my soul needed it]

Awake in the middle of the night from about 2:15am-4:00am.

Tuesday [Radiation Therapy – Day 2]:

7:00am-8:00am Drive from Home to ROnc
8:00am-8:15am RTher [with Mom in tow since I was seeing the new doc this morning – I try Always to have an extra pair of ears around during doctor’s visits – countless times already someone else has heard something I did not because I get stuck on something and check out of the conversation for some period of time]
8:15am-8:35am Wait for appointment with new ROnc
8:35am-8:55am Appointment with new ROnc
9:00am-9:15am Drive from ROnc to Work
9:15am-1:00pm Work
1:00pm-2:00pm Lunch [a whole hour!  two weeks in a row!  got a couple errands done.  :)]
2:00pm-5:30pm Work
5:30pm-6:50pm Drive from Work to Home [with 1 stop to pick up last minute stuff for work pot luck lunch tomorrow and to have a bowl of candy for kids trick-or-treating in the office, and 1 stop to pick up more meds]

Wednesday [Radiation Therapy – Day 3]:

7:00am-8:05am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:35am Waiting to see ROnc [to discuss noticeable side effects Nobody led me to expect I’d have so soon – after Two treatments?!]
8:35am-8:55am ROnc appointment
9:00am-9:15am Drive from ROnc to Work
9:15am-12:30pm Work
12:30pm-2:00pm Halloween Pot Luck Lunch @ Work [& visiting with my work friend’s 18-month-old granddaughter dressed as the cutest pirate ever!]
2:00pm-5:30pm Work
5:30pm-7:00pm Drive from Work to Home [With 3 stops on the way: (1) put gas in the car; (2) Costco – this is a kamikaze run to grab a sweater I’d already bought 2 of (in different colors) in yet a Third color! – Hm, parking lot very empty, what’s up with that?  Oh, right, Halloween – score on the empty Costco!; and (3) the pharmacy Again to pick up the Rx I dropped off last night, and drop off 2 more I got this morning to help deal with side effects of RTher.]

Woke up enough to look at the clock at 3:25am, but managed to get back to sleep without peeing, eating, reading, turning on a light, or even getting out of bed (I think)

Thursday [Radiation Therapy – Day 4]:

7:00am-7:55am Drive from Home to RTher [I actually decided to go all by myself this morning, just like a big girl – and one of my RThers asks where my Mom is and gives me grief about not bringing her with me, for her sake!  (This comes from his understandable perspective of a father with an only child.  Tomorrow I’ll gently remind him that the person at the center of our joint drama isn’t my Mom, it’s me.)  But I did tell him he’d get to see my Mom on Mondays, since Mom will join me on doctor appointment days.]
7:55am-8:05am RTher
8:05am-8:15am Did the PTher I have to do myself to deal with my side effects, and hyper-moisturize the area we’re charring each weekday to hopefully help prevent, well, peeling, weeping, and sloughing of the skin.  🙂
8:20am-8:35am Drive from RTher to Work
8:35am-1:00pm Work
1:00pm-2:00pm Lunch

So, with the start of RTher, apparently comes a new lunch schedule.  Whereas before, I was taking short lunches to make up time taken by randomly-occurring doctor’s appointments, I deliberately made the RTher appointments early enough so that most days (even if slightly delayed by traffic or some other time issue), they would Not interfere with work (I didn’t schedule them so they wouldn’t interfere with work only if timing were perfect every day – this is traffic in greater Southern California I’m dealing with after all).  But that means that most (non-ROnc/non-PTher days) I’ll get to work Early.  Therefore, most days I’ll not only get the hour lunch that used to be my norm, but even after counting the ROnc and/or PTher days when I’ll still be in late, I may even get extra-long lunches on Fridays from getting to work early and storing up some extra work time other days of the week!  We’ll have to see how that works out – or am I just being overly-optimistic now?

2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday [Radiation Therapy – Day 5]:

7:10am-8:05am Drive from Home to RTher [With 1 stop @ Starbucks for the weekly coffee treat – yeah, it’s not my only one this week either, I know]
8:10am-8:20am Rather
8:25-8:40 Drive from RTher to Work
9:45am-1:00pm Work
1:00pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day (um, except Monday)
– blogged
– managed to carve out a whole hour for lunch at least one day
– threw my doctor under the bus and replaced him with a new her doctor
– used my hasn’t-happened-in-several-months one-hour lunch to practice some minor retail therapy
– rearranged physical therapy appointments to conform with my new doctor’s schedule, shared same with Hubby, Mom, Dad and work
– actually participated in a Holiday Party – the Halloween Pot Luck Lunch at work

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Radiation Therapy Journal – Day 3 – Wednesday October 31, 2012

Slightly less freaked out after Not being poked/fought with for two whole days.  We’ll see what the doc has to say about my stomach issues – took anti-nausea meds on the way to RTher this morning.

When I came in to the suite this morning I asked the waiting room receptionist to let my ROnc know that I wanted to see her this morning after my treatment.

Treatment Notes:

– didn’t really notice any sensation today

Doctor’s Appointment:

– I’m glad to see my, yes admittedly combative, attitude yesterday did not put off my new doc.  I brought up the concern about nausea and stomach pain leading to real permanent damage.  She could have pulled the “I’m a doctor, just trust me, it’ll be fine” crap, but she didn’t.  She said she didn’t do my radiation plan (she didn’t, the asshole did), so she brought it up on the computer, showing me where it was and where my stomach was and that they did Not overlap.  She actually showed me medical evidence for what she was saying, thereby buying actual credibility with me.  Only then did she opine that my stomach problems may be a result of my anxiety.  Hm, okay, I was certainly open to that possibility (I was under no illusions that I was no more than an inch below the ceiling, and had been at least that tightly wound for almost two weeks), so let’s treat that with an anti-anxiety med – script 1.  This will also help me sleep, which will help reduce the anxiety, which will help me sleep, and so on.

– And, by the way , I was Not told that I would be swelling would be this bad, or this early – I mean even before today’s treatment!  I’m talking at least a half cup, maybe a full cup, and all the way around to the side of my body and up into my axilla.  Swelling causes pain that is breaking through the two Aleves I have on board 24 hours a day, so is this normal?  Why haven’t I heard about this happening so much and so soon?  So, no, it’s unusual to happen so soon, but it’s not unheard of.  Great.  Okay, so let’s further help me sleep by seeing if I can Not wake up in pain, so let’s treat that with a pain med – script 2.

Side Effects:

– No nausea or stomach pain today, that’s a step in the right direction

– breast pain: ice pack used three times – twice on the hematoma lateral to the nipple, and once on the nipple itself.  One time it felt so good in there I almost forgot to take it out after 15 minutes.  Time to start using a timer on that deal again.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Radiation Therapy Journal – Day 2 – Tuesday October 30, 2012

Generally pretty freaked out still.  Meeting my new ROnc for the first time.  We’ll see how it goes.

Treatment Notes:

– slight feeling of warmth when they did the up-from-under angle

Doctor’s Appointment:

– I’ll admit it, I came in swinging my sword, so to speak.  I was not about to give her a chance to be like the first doctor I’d seen in that office.  It wasn’t just me establishing dominance though, I was still honestly anxious about the whole deal and needed her to know that (as if I could hide it, ha).  It was a kind of a crappy way to get to know a new doctor, but it was what it was.  I told her that I could not wait 15 minutes each week after my treatment to see her because I had to be at work in a nearby city by 9:00am – yes, every weekday.  She unfortunately gave me the “I have a lot of patients and I try to see everybody as soon after their therapy as possible.”  Okay, realistically I know there are other people in the world.  Absolutely.  But, unless some of those other patients are going to go work my work day, or pay my bills…what?  They don’t care about me?  They have their own lives and shit to worry about?  Right.  Absolutely.  Me too.  I prefaced my next comment by saying I hoped she understood how I said this, but “I don’t care about your other patients.  I have to manage my life first.”  Told doc about yesterday’s nausea and she gave me a script for anti-nausea meds.

Side Effects:

– so yesterday’s nausea has today turned into today’s actual stomach pain, just like when my GERD is out of control.  So this makes me wonder exactly where they’re radiating that I’m having such stomach problems.  And I’m going to have to see the doc again tomorrow (I was told I could see a doc any day I needed to, but no Less often than once a week during radiation), because a few months of this (side effects, so I’m told, can last from 3 weeks to a couple of months After the end of treatment as your body catches back up to the damage that’s been done to it) is one thing, 40 years of it from permanent damage done is something we need to talk about.  So back to the doc again tomorrow.

– breast pain: wow, it’s been a bunch of weeks since I thought about putting an ice pack in my bra, and I’m back to that – two separate times.