Radiation Therapy Journal – Day 9 – Thursday November 8, 2012

Treatment Notes:

– some warmth during the up-from-under portion of today’s program, otherwise not much, kinda in-zap-out

Side Effects:

– lightheadedness/dizziness again: after doing my schmear the boob with all the healing stuff & apply deodorant, as I’m walking from the center to my car – tried some deep breathing for more oxygen, didn’t seem to help.  Made it to the car okay and no concerns about driving, but weird…actually Did look this up on the ‘net yesterday and it seems not that uncommon – another thing nobody mentioned ahead of time, fun.

– Yeah, the lightheaded thing happened again today, on one of my work break walks around the block.

– a little more pain today, but not bad.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Song Lyrics That Speak to Me – Shiver by Jamie O’Neal

Shiver – by Jamie O’Neal

Don’t know how you do it,
Like there’s nothing to it.
You just look my way.
You come a little closer,
I lose my composure.
Don’t know what to say.

I’m overwhelmed,
You smile I melt.
And somewhere inside,
Oh baby I…

Shiver, tremble, I never,
No I never once,
Felt so much.
It shakes me,
How you take me…
Deeper than I’ve ever been,
It’s to the core,
Under my skin,
I shiver…

I love the way your whisper,
Slowly, softly lingers…
In my ears.
You move a little lower,
The world starts spinning slower,
Then I disappear.

Your lips so close,
We kiss almost,
Just barely touch,
But that’s enought to make me…

Shiver, tremble, I never,
No I never once,
Felt so much.
It shakes me,
How you take me…
Deeper than I’ve ever been,
It’s to the core,
Under my skin,
I shiver…

Oh, Shakes me,
How you take me.
Deeper than I’ve ever been,
It’s to the core,
Under my skin,
I shiver, tremble.
I never, no I never once,
Felt so much it shakes me…
How you take me.
Deeper than I’ve ever been,
It’s to the core,
Under my skin, I shiver…

Ooh, shiver.

PaulSir, if you ever make it to this page, this one’s for you, but you already knew that.

[Posted Thursday November 8, 2012]

Radiation Therapy Journal – Day 8 – Wednesday November 7, 2012

Treatment Notes:

– I was late Again this morning, but Not as late as they were (Please see “Schedule: Week of November 5-9, 2012.”)

– Otherwise, nothing really except being chilly this morning when I peeled down to skin (makes it sound sexy, doesn’t it?) for the deal so my female “guy” considerately offered, then got me a heated blankie (well, for from the navel down at least, but it did help and it was very nice of her to offer so quickly after I mentioned it was chilly!)

Social Worker Visit:

– I had planned to find her after my treatment.  Apparently, the waiting room receptionist let her know I was here and she found me in the interior waiting room while my linear accelerator was misbehaving this morning.  So we chatted.  She was very nice – basically just wanted to make sure I knew whatever assistance resources I needed (transportation & some other stuff I likewise don’t need – at least not today) were available to me if I Did need them.  Just a basic meet-n-greet, so if I needed her and/or the services she could hook me up with, we’d already know each other.  Very nice.

– While I was sitting there with the social worker (since I don’t gown up every day, so I was in my street clothes), someone who clearly works there saw me Not gowned and asked if I was a patient.  As I was in the middle of a sentence in conversation with the social worker, I answered ‘yes’ without thinking and went back to my conversation without missing a beat, as they say.  Afterwards though, I thought about it.  My first thought being “I know why you’re asking and I Hope you Don’t go there with Me!”  (Please see “Schedule: Week of October 29-November 2, 2012.”)

Side Effects:

– lightheadedness/dizziness again, twice: once walking out of the Disney Family Cancer Center to my car right after RTher this morning, and again this afternoon just by getting up from my desk and walking down the hallway.  Okay, so not a side effect of anti-nausea meds ‘cuz I didn’t take any this morning (supposed to be taken 30 min before radiation which is smack in the middle of my drive To radiation – yes, that means I drive an Hour to RTher Each Morning) as I was too busy just trying to get there on time.  I’m still left with is it a blood sugar thing, or now maybe just another side effect of radiation therapy nobody bothered to tell me about?

[In case you’re thinking, as I repeatedly speculate about causes of things and what’s happening in my body/life as I go through this, that I should instead just look it up or ask someone – try walking my walk and Then you can decide I’m being lazy, or using my disease as an excuse for how much I’m Not getting done in my life right now.  Hm, that previous sentence right there just may be called projecting by some, and I’m not sure they’d be wrong.  Ok, time to be kind to myself, and get back on track with this post.]

– more energy and less pain (at least until 3:30pmish) again today.  I’m going to go ahead and credit the acupuncture and hope to hell it lasts until my next treatment.  I’m well aware of the fact that my feeling better about the things I asked her to work on could very well simply be the placebo effect . . . but even if it is, does that really matter?  🙂

– and we have a new one today, or at least it got noticed today – Lefty’s areola is huge!  Okay, I’ve never had big ones.  I used to say they just never grew up and when they were the same size I was mostly okay with that.  This remained mostly the same it seems to me pretty much up through the beginning of RTher.  And then this morning the left one is twice the size of the right one!  Fabulous.  I hope this change is not permanent, though I have been warned that some of the skin changes during RTher may indeed be permanent.  Um self-pity warning – I’ve gone through a lot Already to try to come out symmetrical on the other end of this bullcrap – if this is permanent, it’s gonna suck!

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

I Missed You Last Night, Grandma – Single Malt Scotch and Election Returns

I lost my grandmother, technically last New Year’s Eve, but really last December 30, 2011.  I was lucky enough to have her in my life, with all her faculties and still able to live alone (with non-live-in help) right up until the end – her end being when I was 45 years old.

I got to have the wonderful spoiling as a child (there was something special about Coca-Cola with ice in grandma’s glass glasses – there was no Coke in my fridge at home), and the privilege of knowing her from an adult perspective too, as I grew up.

My family is very political, very blue, very articulate and very opinionated.

Grandma would have Loved the election last night, and I would have been on the phone with her (with my Dad hanging out at her house for the festivities) for hours, all of us with a glass of single-malt scotch in our hands . . .

A few years ago, I decided everybody in my family was getting single-malt scotch for the holidays.  In addition to the above traits, we also all drink scotch (although our individual places on the peat-oak spectrum varies).  I didn’t think all that much  about it until during one visit with Grandma soon after that holiday where I gifted everyone scotch, she shared with me that she had told her bridge friends (she played bridge up until the last month of her life, aged 94) about my gift, and her friends thought she had the coolest grandkids ever!

I’ve been pretty busy lately just surviving the required schedule of work and treatment, but last night (and I know she was there with me, as she is now, just by my remembering her) I thought about how much she would have enjoyed her evening . . . keeping up with various family members by phone as the night progressed, with a glass of single-malt for sipping, as Obama won a second term and the entire country (in various ways) voted for fairness, equality and the positive evolution of our society.

Below are the remarks I shared at Grandma’s memorial service (redacted to preserve family privacy):

My grandmother was clearly the matriarch of this family. She ran it with love, strength, passion and intelligence.

I grew up being called “Grandma’s own,” both for the similarities in our personalities and because there is a very strong physical family resemblance. I always heard that moniker as a compliment and accepted with pride that I was like her, someone I love and admire.

That’s not to say that strength and backbone, combined with a vast vocabulary, are always a good thing. In certain circumstances, that combination can result in a mighty sharp tongue. It has been said of Grandma that her tongue was sharp enough to cut pastrami. Like many inheritable traits, that one has been passed down through the generations. Indeed, I’ve heard that same tongue come out of [my aunt]’s mouth, and my own.

But the best side of that combination is the fierce love and support she demonstrated for those people and causes that were important to her.

For instance, how many people can say their grandmother took them to a pro-choice rally? An aunt, mother, sister, yes, but their Grandmother? Not many, I don’t think…but I can.

And on a more personal level, while that kind of strength and smarts can have its downside – as many in the family sometimes have trouble talking about less than positive emotions (anger, sadness, frustration) – Grandma always communicated to me her no-doubt-about-it, unshakeable, absolute, almost taken-for-granted faith in my abilities to succeed in whatever life throws at me, something that has stood me in good stead through the years.

And it started early. Those of you who’ve been to our family dinner celebrations have seen that generally they are intelligent and well-informed, with strong passionate opinions flying all over the place.  I recall being encouraged from a very early age (one at which other families might think kids should be seen and not heard) to participate in the conversations and being taken seriously…as long as I could back up my opinion.

Grandma also provided what she could, even when it wasn’t requested in the best possible manner. When I was in my late elementary school years, Grandma and Grandpa were at that point in their lives when they were traveling all over the world, going to all the places they had decided they wanted to see. I was completely jealous and in what must have been a truly whiny voice, I said (and I think I actually said it very much like this) “You guys have been everywhere and I’ve never even been to Alaska.” Why I said Alaska I have no idea, it was the first thing that came to my mind. But they heard the need, the request behind the whining tone. After a brief pause, I was told, “You’re right, and if, when you graduate from elementary school, you still want to go to Alaska, we’ll take you.” Well, I did still want to go and go we did, on a two-week cruise. My first memory of that trip was being treated like a grown-up by both of them, at the tender age of 13. I have myriad other memories from that trip – from my first Tequila Sunrise that I don’t think they knew about, to the other kids I met on the ship, to watching glaciers break off into the sea in Glacier Bay, to just missing being in time for High Tea at the Empress Hotel in Victoria, British Columbia, to the hand-beaded slippers I brought home and wore until they fell apart and off my feet.

Not only did I grow up being called “grandma’s own” on personality, but physical genes are very strong, especially through the women in this family. I was constantly called “[my aunt’s name]” while growing up, even when [my aunt] wasn’t around. I knew I had reached true adulthood in my Grandmother’s eyes when, at a family dinner sometime in my 20’s, Grandma called [my aunt] “[my name].”

All of that strength and passion and strong opinions can sometimes be hard to get along with. I realize that at times I resemble that remark. I, of course, was only a child for much of my relationship with both Grandma and Grandpa, but something about how they got along I think had sunk in by the time I had grown up enough to start looking for a partner for myself. I have to wonder if at least I learned that there are men out there who can live with and love a woman with that much sense of self, and that helped me find my own.

Just like Momsie before her, Grandma wasn’t done with anything after losing Grandpa. When I first decided to speak today and began deliberately reflecting on my Grandmother’s life, I had a phrase in mind that I thought applied here. I had heard it many times – something about speeding in spent and this close to being late for the end of one’s life – but I couldn’t remember exactly how it went. Coincidentally (as I’m sure it had nothing to do with me from his perspective), last week a friend of mine posted the exact phrase I was thinking of on Facebook. It goes like this: “Life’s journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out, shouting ‘Holy Shit…What a Ride!'” That was my grandmother.

During her blessedly short illness, some of her hospital caregivers who didn’t see her when being admitted, but later when she was fighting the good fight, tried to tell us that her sometimes only semi-lucid state was maybe the best we could hope for – she was 94 after all. But we had to educate them, that, as [Hubby] put it – 2 weeks ago you had to make an appointment to get on her social calendar! In fact, the last time she played bridge, just a couple of weeks before she became ill, she played 3 days in a row, and was disappointed that she and her partner only came in 4th out of 19 tables!

Last year for Mother’s Day, [Hubby] and I gave her an original iPad after we had upgraded to the new models for ourselves. During that visit, with it being her first time ever using an iPad, she picked up how to read her email, and download and read books on the device. The last time I visited with her, just a week or so before her final hospital stay, she showed off to me that she had learned how to download borrowed books from the local library and read them on the iPad!

So Grandma, here is my pledge to you: As “Grandma’s own,” I will try to live my life as fully, as passionately, and as lovingly as you did, right to the very end. I miss you and I will love you forever.

Last night, you came to the front of my mind.  What I wrote above was true then, is true today, and will always be true.

* * *

While writing this post and wandering around WordPress, I found these ladies:

Margaret and Helen

They remind me so much of none other than my grandmother (who, coincidentally, was also named Helen), and her sister-in-law, my Great-Aunt.  Not that I could Ever replace my grandmother, but I’m gonna head over there and see if they’ll adopt me over the net or something.  Or at the very least I’m gonna go follow their blog, for some guaranteed future laughs, I’m sure.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

The Best of Today’s Youth

This brought tears to my eyes.

Without further ado. . .

K-State Proud

I’m also putting this on my videos page.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

 

Radiation Therapy Journal – Day 7 – Tuesday November 6, 2012

Treatment Notes:

– it’s films day!  Every week or so, they take new films to make sure they’re treating the correct area according to the plan – you know, killing the tissue they mean to be killing.  🙂  So today was a couple minutes longer than usual, and I got to meet someone new (a she, but for ease of language, she’ll just be “one of my guys” going forward) who I guess is interning for a year or so at this facility.

– got the last of my parking validation tickets – thank the Goddess for small favors, right? – Okay, that’s just bitterness, pure and simple.  Yes, it is nice of them to provide parking validation for my radiation treatments, they don’t have to do that. <sigh>  Better?

Social Worker Visit:

– I was told after my treatment that the social worker was looking for me.  So I did my post-treatment ablutions in the restroom off the main lobby waiting room and when I was done, she was there waiting for me.  Thankfully, she asked me if I had a few minutes to talk instead of just launching into whatever she wants to talk to me about.  Unfortunately, after traffic making me late to work, and spending a few extra minutes with one of my guys to receive the balance of my parking validation tickets, signing the paper saying I had received all of them, and waiting ’til he copied the paper that I signed saying I had received them all for me (some call me the “Paper Nazi”), the answer was actually ‘no,’ as I had to get back to work.  She accepted that gracefully (yay!) and said she’d catch up with me tomorrow.  So, tomorrow when I head back to my guys (assuming I get there on time – which is Exactly why I built in time between being there and getting to work – I was On Time to work today!), I’ll let the waiting room receptionist know I have time to see the social worker, so stay tuned for tomorrow’s episode of Radiation Therapy Journal!

Side Effects:

– lightheadedness/dizziness as I’m walking from my car to the elevator in the parking garage at work.  Hm, had a little (and I do mean little – only about 100 calories or so) bite on the way to RTher this morning.  Is it a food thing, or something else.  I also took the anti-nausea meds 30 min before RTher this morning and yesterday (also had lightheadedness yesterday).  Hm, side effect of the meds?  Must look up same online.

– lots of energy today, but it was getting perceived by my mind as anxiety (maybe ‘cuz I was anxious about wanting to get my vote in!).  Why after so many days of fatigue claims am I now having extra energy?  Last night’s acupuncture must have been it.  There is a program of integrative medicine at the Disney Family Cancer Center, including acupuncture, which I’ve been getting on the Mondays of non-support-group weeks (I figure I can do 1 “extra,” as in not-strictly-required-but-still-helpful/recommended thing each week, but not more, so I’m staggering acupuncture and support group).  As Disney participates in many teaching programs with other institutions, including acupuncture, I’ve been getting treatments from students (supervised by someone fully-trained of course) on their 10-week internships.  I really like the student I’m working with now and would love her to stay (being treated by students saves me $15 a treatment), but I’ll just enjoy it while she’s here, and I’m sure the next one will be good too.  So, she worked last night on first, giving me more energy, and second, some pain relief – hence this notation and the next!  🙂

– less pain than before, until about 3:30pm when it started up again, but still less throughout the evening – Yep, the acupuncture again.  Maybe I should ask for this treatment combination again in two weeks.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Radiation Therapy Journal – Day 6 – Monday November 5, 2012

Treatment Notes:

– a weird cold burning in the lower lateral portion of the breast during the down-from-above portion

– a clean machine today!  🙂

Doctor’s Visit:

– clearly I’m doing some better after a weekend where nobody got in my face about anything (but I Do Not feel rested starting a new workweek) – when we were going over my side effects I’m having and the meds I’m taking to manage them, I told my ROnc I’m aware of and consciously managing my CNS depressants – therefore, taking Benadryl to sleep and Tylenol #3 for pain management (although I’m likely to be upping my use of that some because I’m still getting too frequent and severe breakthrough pain), but I’m saving my Ativan for the next time I want to drop-kick someone’s head.  🙂  There was laughter throughout the room and she thought that was a very good use of that particular medication.

– so it seems my nipple issues are normal, or in the doctor’s words nipple sensitivity is common.  Mm-hm, so my nipple getting hard for no good reason and thereby causing me pain is common, so glad to know that.  Despite my (ongoing) concerns, I must be gooping up enough and with the right stuff ‘cuz the boob is Not Yet lobstered.  Woohoo!

Side Effects:

– more frequent breakthrough pain up to almost a 5 on a scale of 1 to 10

– lightheadedness/shaking: I’m guessing this is from a blood sugar issue since all I could think of when this started was FOOD, FOOD, FOOD, and when I ate a big bowl of cereal with raisins and most of a large banana (then ate the rest of the banana), I started to feel better.  It seems that lumberjack appetite is still here (‘cuz I’m thinking of having a peanut butter sandwich too).

– fatigue: was yawning on my drive from RTher to Work, and at 11:00am I could easily lay down and close my eyes.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

SNL (1975-1980, 1985-Present): November 3-4, 2012

Who gets the reference?

Saturday:

– coffee
– reading in bed
– pedicure/nail fill @ the Nail Forum – Porter Ranch
– underarm waxing – wasn’t sure it was a good idea, but decided to go for it because I did not want to shave (I figured more risk of doing damage shaving than by an experienced aesthetician doing a quick wax – which would also last nearly the duration of my RTher).
– reading in bed
– quickie dinner @ home with Hubby

Sunday:

– coffee
vaping with Hubby
– napping
– brunch

Otherwise known as “something to have Apple Blossom Honey on.”  I woke up this morning wanting some of the apple blossom honey we picked up in Oak Glen last weekend.  I woke up from my nap to find Hubby in his room . . .

[Yes, we do not share a bedroom.  We haven’t for oh, 15 years or so?  It’s partly because he snores, and partly due to changing and incompatible work schedules over the years.  Don’t worry, when we wanna play, we have a whole house to do it in, plus two beds we’re not afraid to mess up ‘cuz they both get slept in every night.  🙂  And, Hubby having his own room serves us in another way than just letting us both sleep – it lets him deal with my need for a tidy, sparely decorated house – by giving him a place Not to have to keep things cleaned up to my standards,]

So, anyway , earlier this morning while we were downstairs hanging out I was trying to find something to have honey on for breffast, asking if he felt like eating (and well, making) pancakes – did we have a pour-liquid-and-shake Biscuit jug (I didn’t want either of us to spend half the day cooking)?  But that didn’t work out, and I Finally felt like if I lay down I could Actually Nap!  So I did that, and woke up to find Hubby having cereal and  went to find myself a carrier for the honey I wanted.  Turns out (after eating a breakfast of actual food with protein and stuff) the carrier of the day was a buttered waffle, previously frozen and now toasted golden brown and warm.  🙂  Then I wrote this post, and now I think I’ll go have the other waffle left in the bag in the box in the freezer, toasted with butter and Apple Blossom Honey, of course. . .

– blogging
– breffast #2 = waffle #2
– more blogging
– eating yummy dinner (pork roast, broccoli, potatoes) cooked by Hubby
– watching tv off the DVR with Hubby (Castle, Once Upon a Time)

Schedule: Week of October 29-November 2, 2012

Monday [Times after 8:30am approximate – I was out of my routine & not keeping strict track] [Radiation Therapy – Day 1]:

7:30am-8:30am Drive from Home to Disney Family Cancer Center to straighten this out before my appointment at 11:30am [Meet Hubby and Mom to back me up/help me out]
8:30am-9:00am Find the CEO of St. Joseph’s Hospital – Request meeting with same – Get escorted to his office

9:00am-9:10am Throw Dr. Rex Hoffman under the bus with the CEO of the hospital at which he works
9:15am-10:15am Eat breffast w/ Mom & Hubby in the hospital cafeteria – nearly free with coupons from the hospital CEO [wasn’t that nice of him?]
10:30am-11:15am Visit with Nurse Navigator [to make sure I was still welcome in her office, since I bcc’d her on the email in this post – and I was  🙂 – nice chance to catch up] [As I’m walking across the way to the other building I see Dad driving up to join my backup posse]
11:15am-11:45am Wait for my 11:30am first radiation therapy appointment to begin [Dr. Hoffman being the only ROnc in the office today, my care will be changed to another doctor tomorrow]
11:45am-12:30pm First Radiation Therapy appt [w/ Mom, Dad and Hubby as backup]
12:30pm-2:30pm Drive Hubby to his truck [parked and left at a local Starbucks this am to save 1 parking fee at doctor’s appointment] – went w/ Hubby in his truck to a vape store so he could test some flavors [leaving my car in the very same Starbucks parking lot ‘cuz it had already been a tough day and I just wanted to be with him for now] – going back to pick up my car
2:30pm-3:30pm Drive from Starbucks to Home [with 1 stop at a local deli for chicken noodle soup w/ a dry matzo ball on the side – my soul needed it]

Awake in the middle of the night from about 2:15am-4:00am.

Tuesday [Radiation Therapy – Day 2]:

7:00am-8:00am Drive from Home to ROnc
8:00am-8:15am RTher [with Mom in tow since I was seeing the new doc this morning – I try Always to have an extra pair of ears around during doctor’s visits – countless times already someone else has heard something I did not because I get stuck on something and check out of the conversation for some period of time]
8:15am-8:35am Wait for appointment with new ROnc
8:35am-8:55am Appointment with new ROnc
9:00am-9:15am Drive from ROnc to Work
9:15am-1:00pm Work
1:00pm-2:00pm Lunch [a whole hour!  two weeks in a row!  got a couple errands done.  :)]
2:00pm-5:30pm Work
5:30pm-6:50pm Drive from Work to Home [with 1 stop to pick up last minute stuff for work pot luck lunch tomorrow and to have a bowl of candy for kids trick-or-treating in the office, and 1 stop to pick up more meds]

Wednesday [Radiation Therapy – Day 3]:

7:00am-8:05am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:35am Waiting to see ROnc [to discuss noticeable side effects Nobody led me to expect I’d have so soon – after Two treatments?!]
8:35am-8:55am ROnc appointment
9:00am-9:15am Drive from ROnc to Work
9:15am-12:30pm Work
12:30pm-2:00pm Halloween Pot Luck Lunch @ Work [& visiting with my work friend’s 18-month-old granddaughter dressed as the cutest pirate ever!]
2:00pm-5:30pm Work
5:30pm-7:00pm Drive from Work to Home [With 3 stops on the way: (1) put gas in the car; (2) Costco – this is a kamikaze run to grab a sweater I’d already bought 2 of (in different colors) in yet a Third color! – Hm, parking lot very empty, what’s up with that?  Oh, right, Halloween – score on the empty Costco!; and (3) the pharmacy Again to pick up the Rx I dropped off last night, and drop off 2 more I got this morning to help deal with side effects of RTher.]

Woke up enough to look at the clock at 3:25am, but managed to get back to sleep without peeing, eating, reading, turning on a light, or even getting out of bed (I think)

Thursday [Radiation Therapy – Day 4]:

7:00am-7:55am Drive from Home to RTher [I actually decided to go all by myself this morning, just like a big girl – and one of my RThers asks where my Mom is and gives me grief about not bringing her with me, for her sake!  (This comes from his understandable perspective of a father with an only child.  Tomorrow I’ll gently remind him that the person at the center of our joint drama isn’t my Mom, it’s me.)  But I did tell him he’d get to see my Mom on Mondays, since Mom will join me on doctor appointment days.]
7:55am-8:05am RTher
8:05am-8:15am Did the PTher I have to do myself to deal with my side effects, and hyper-moisturize the area we’re charring each weekday to hopefully help prevent, well, peeling, weeping, and sloughing of the skin.  🙂
8:20am-8:35am Drive from RTher to Work
8:35am-1:00pm Work
1:00pm-2:00pm Lunch

So, with the start of RTher, apparently comes a new lunch schedule.  Whereas before, I was taking short lunches to make up time taken by randomly-occurring doctor’s appointments, I deliberately made the RTher appointments early enough so that most days (even if slightly delayed by traffic or some other time issue), they would Not interfere with work (I didn’t schedule them so they wouldn’t interfere with work only if timing were perfect every day – this is traffic in greater Southern California I’m dealing with after all).  But that means that most (non-ROnc/non-PTher days) I’ll get to work Early.  Therefore, most days I’ll not only get the hour lunch that used to be my norm, but even after counting the ROnc and/or PTher days when I’ll still be in late, I may even get extra-long lunches on Fridays from getting to work early and storing up some extra work time other days of the week!  We’ll have to see how that works out – or am I just being overly-optimistic now?

2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday [Radiation Therapy – Day 5]:

7:10am-8:05am Drive from Home to RTher [With 1 stop @ Starbucks for the weekly coffee treat – yeah, it’s not my only one this week either, I know]
8:10am-8:20am Rather
8:25-8:40 Drive from RTher to Work
9:45am-1:00pm Work
1:00pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day (um, except Monday)
– blogged
– managed to carve out a whole hour for lunch at least one day
– threw my doctor under the bus and replaced him with a new her doctor
– used my hasn’t-happened-in-several-months one-hour lunch to practice some minor retail therapy
– rearranged physical therapy appointments to conform with my new doctor’s schedule, shared same with Hubby, Mom, Dad and work
– actually participated in a Holiday Party – the Halloween Pot Luck Lunch at work

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Radiation Therapy Journal – Day 5 – Friday November 2, 2012

Treatment Notes:

– a little warmth during the down-from-above portion

– Um, I’m going to assume it was Betadine, but there was something splashed on the arm of the machine that I could see behind the head of the machine during the down-from-above portion.  I brought it to the attention of one of my guys (RTech) when my treatment was done (it wasn’t anything that was going to touch me, so I didn’t feel the need to stop things in their tracks to have this dealt with, but did want them to know about it before they put another patient on the table), and they were cleaning it up before I’d even covered up enough to leave the room.  🙂

– Oh, and I told Iggy about my conversations last night (See Radiation Therapy Journal – Day 4 – Thursday November 2, 2012).  He thought it was pretty cool that I’d even ask.  And then I reminded him who we were all here for – to which he completely and heartily agreed.

Side Effects:

– freakin’ lumberjack appetite!  It could be because my hormones are waxing (I’ll let you know if this changes when they crest), but A) I haven’t been noticing any other PMS yet, and B) it would make sense as a side effect of radiation (another one I’ve not heard of – hello people, can I get some information here please?) since the object of the treatment is to, well, not to put too fine a point on it, to destroy my cells, and since this does not distinguish between healthy cells and cancer cells, they both ‘get it,’ so to speak.  So my body needing more fuel to try to heal the damage being done and rebuild my tissue makes sense to my fairly-medically-aware-but-not-an-actual-doctor brain (I was formerly licensed as an EMT and provided volunteer first-responder emergency care at local parades & festivals for a few years).

– pain at the incision on my nipple – this one is starting to worry me a bit.  While other things are coming and going with my mood, stress hormones level, girlie hormones level, sleeping or not sleeping, etc. – this one’s staying fairly constant.  This was Still tender when I started this new treatment – tender enough to be wearing a nursing pad in my bra t0 1) reduce chafing/make sure the softest possible surface was touching it, and 2) to fill out the cup to match the size of the other one (yeah, before I started any treatment at all, lefty was bigger and now righty’s already been surgically reduced once) – of course now that I’ve started radiation and lefty is swollen from damage…things are again reversed.  I’ll let you know if it gives way.

– fatigue – I was doing mostly okay and completely bonked at about 3:30pm.  I’ve forced myself to actually keep working, but please Goddess, when is 5:30pm already?

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