Schedule: Week of November 12-16, 2012

Monday [Radiation Therapy – Day 11]:

7:00am-8:00am Drive from Home to RTher

[With 1 stop @ Starbucks because it’s Veteran’s Day (which I don’t get off from work), so traffic is holiday-light, so I got nearly to RTher by 7:40am and stopped to get myself a treat (yeah, I know, quit counting, k?) on the way for no other reason than I had time.]

8:05am-8:15am RTher
8:15am-8:30am Appointment with ROnc
8:30am-9:05am PTher
9:10am-9:25am Drive from PTher to Work
9:30am-1:30pm Work
1:30pm-2:30pm Lunch
2:30pm-5:30pm Work
5:30pm-6:35pm Drive from Work to Home

Tuesday [Radiation Therapy – Day 12]:

7:08am-8:15am Drive from Home to RTher
8:25am-8:35am RTher
8:40am-9:05am Post-RTher ablutions

[Walked back into the female changing room after RTher and found one of the private rooms open, with my new friend “Dana” doing her post-RTher ablutions, so I slipped into the room with her (so we could share the mirror) and proceeded to chat and do our stuff together – sharing with each other what we’re each using and having a lovely time actually.  As wonderful as my entire support system is (And They Are!), there is something incredibly freeing and relaxing about being around someone (even if, to other people, they would seem a stranger) who is going through what you are – there is an instant intimacy and community like no other.  So we slathered boob goop on ourselves and chatted, I shared this blog and my contact details with her.  She said she’d read my blog and gimme a call to give me her contact info.  I hope she does – I had to get to work and she had to get upstairs for something so we couldn’t talk for but a few minutes – but I really like her.  So “Dana,” if you’re reading this like you said you were gonna, gimme a call.  :)]

9:10am-9:25am Drive from RTher to Work

[With 1 stop to put gas in the car]

9:30am-1:30pm Work
1:30pm-2:45pm Lunch

[No good deed goes unpunished.  I had 3 sweaters I had bought and after getting them home decided they didn’t fit well enough to keep.  Every year my company finds a family who doesn’t have all of what they need and helps them out.  One of the things this year’s family asked for was food.  I figured I’d take the sweaters back and use that money to buy food for this year’s family.  I can do that in an hour, right?  Wrong.

So after daring to take a few minutes this morning to talk to someone who, more than almost anybody else in My world right now, knows Exactly what I’m going through, I’m all of a sudden (with yesterday’s PTher) an hour down on work time this week.  And now after doing my good deed (despite giving myself an out not to do Anything for Anyone this year – oh, and I’m sticking by that for my own family – won’t they be surprised?), I’m an hour and 15 minutes down on work time.

So much for a foot massage Friday at lunch, eh?]

2:45pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Support Group
7:00-8:35pm Support Group
8:35pm-9:15pm Drive from Support Group to Home

Wednesday [Radiation Therapy – Day 13]:

7:05am-8:20am Drive from Home to RTher
8:30am-8:45am Drive from RTher to Work

[Wait, aren’t we missing an entry in there?  Yes, yes we are.  As it turns out the entire computer system for the hospital, and by extension, the Cancer Center went down at 4:30am this morning.  It still wasn’t up when I walked in for RTher this morning, and of course since the medical records are all electronic, they couldn’t even call me to save me driving an hour an 15 minutes for nothing.

And if the system comes up, it takes at least 45 minutes for the machine to warm up, Then they have to go through their daily calibration (or whatever they call it), so who knows if I’m getting my treatment today or not.  So I was originally going to have my last treatment on December 12th, but since my facility is closed on Thanksgiving and the day after, we’re now taking two days on the end of my treatment.  And if I don’t get treatment today, then we’ll add this day onto the end of my treatment.  And then if I (yes, I, not my doctors, it’s not there body – I’m going to get two of their opinions and then make the decision myself) decide not to have the Boost at the end, then that adds another 7 treatments or so on the end, so I’ll be lucky to be done with this by Christmas.

And I have no idea when they’ll be able to treat me today, which means as much energy as I’ve put into making this as easy on my employer as possible, I now have to tell them I need to wait by the phone and bail on them immediately if it rings.  They’ll understand, but it pisses me off.  I simply Do Not have time in my day for it to get rearranged like this.  Please see Rule #3.

Happy Hump Day!]

 8:45am-1:00pm Work

[Got a call at 9:15am from one of my guys.  Apparently the machine is back up and he wants to know if I want to come in for my treatment today.  I ask him when.  He says he has 1:15pm, 1:30pm . . . I take the 1:15 spot, since that actually does Not need an announcement at work – I’ll just take my usual lunch hour and use it to go get treatment instead of…

…what I was going to do was make a deposit to my HSA account to get the tax breaks of maxing out my HSA deposit for this year and be able to pay some of the medical providers who’ve been sending me bills.  But now that will have to wait for another day.  Doesn’t sound like a big deal, I know.  My life feels so full right now, tho, that getting rearranged is more of a big deal than it might be for, well, you.

And I’m doing things on my lunch hour sort of because I am so tired these days, in that A) there’s no way I’m doing it on the way home, I’m completely done by the end of my work day,  so this way Some of it gets done, and B) I’m afraid that if I stopped and rested at lunch I may not get going again for the afternoon, so this way I have something to keep me going while I plow through my day in one fell swoop, as they say.]

1:00pm-1:20pm Drive from Work to RTher
1:20pm-1:30pm RTher
1:30pm-1:35pm Post-RTher ablutions
1:35pm-1:45pm Drive from RTher to Work
1:45pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Thursday [Radiation Therapy – Day 14]:

7:05am-8:05am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:20am Post-RTher ablutions
8:20am-8:30am Drive from RTher to Work
8:30am-1:00pm Work
1:00pm-2:00pm Lunch

[Doing today what I wanted to do yesterday at lunch – depositing some money into a couple of accounts so bills can be paid – and they can leave me the hell alone already!  :)]

2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday [Radiation Therapy – Day 15]:

Additional Tasks Accomplished This Week:

– blogged
– took a hat I had knitted for myself and gave it to one of the supervisors at my office to send to her sister, who has finished chemo and radiation, but whose home got slammed in Sandy – at least last week she was wearing a hat (‘cuz her hair hasn’t grown back yet from chemo), under multiple blankets and eating chips for dinner ‘cuz she had no power or heat – ‘cuz I do have hair, power and heat at home, and the means to cook a hot dinner.
– managed Not to run out of gas in the car (it was a pretty close call one day)
– emailed with my cousin on whether I will or will not be coming to her Thanksgiving shindig next week.  It makes me sad that I had to decline, but with Hubby maybe having to work over TG weekend (yeah, crappy, but oh well), and me literally not knowing how I’m going to feel day-to-day right now, since she needs to know for sure by Tuesday noon to plan her party, I had to decline as I honestly can’t guarantee knowing by then if either Hubby or me will be able to/up to doing Thursday.  So Hubby and me are on our own for Turkey Day, but it’s not the first time (prolly won’t be the last) and we’re okay with that.  We’ll either find somewhere else to go, do our own little thing just the two of us, or just hang out together and have peanut butter & jelly sandwiches.

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Schedule: Week of November 5-9, 2012

Monday [Radiation Therapy – Day 6]:

7:10am-8:25am Drive from Home to RTher

[fucking traffic! – being late on Monday morning is a shitty way to start the week]

8:25am-8:35am RTher
8:40am-9:00am Weekly visit with ROnc
9:05am-9:20am Drive from RTher to Work
9:20am-1:00pm Work
1:00pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-5:45pm Drive from Work to Acupuncture
5:55pm-7:00pm Acupuncture
7:00pm-7:45p Drive from Acupuncture to Home

Tuesday [Radiation Therapy – Day 7]:

7:00am-8:20am Drive from Home to RTher

[fucking traffic, again! – because starting my day off stressed for more than an hour is so conducive to being healthy, Not!]

8:25am-8:35am RTher
8:35am-8:45am Post-RTher ablutions

[first aid cream on the nipple scar, scar cream on all 5 surgical scars, super-moisturizing cream on the whole boob – plus massage to minimize tissue damage, deodorant – no antiperspirant for me during radiation (aluminum on the skin interferes with the killing of the cells, dontcha know?), and no creams or goops of any kind for 4 hours before radiation treatment (again, interferes with that killing goal)]

8:45am-9:00am Drive from RTher to Work
9:00am-1:30pm Work
1:30pm-2:30pm Lunch

[Acapulco: Carnitas]

2:30pm-530pm Work
5:30pm-6:35pm Drive from Work to Polling Place

[with 1 stop to get gas]

6:35pm-6:40pm Vote
6:40pm-6:45pm Drive from Polling Place to Home

Wednesday [Radiation Therapy – Day 8]:

7:05am-8:05am Drive from Home to RTher
8:10am-8:30am Wait for RTher/Meet social worker

[it seems the machine wasn’t behaving this morning (it is tested every morning I guess before the first patient – me – is put on it) and it took a few minutes for someone to beat it into submission]

8:30am-8:40am RTher
8:40am-8:45am Post-RTher ablutions
8:45am-9:05am Drive from RTher to Work
9:05am-1:00pm Work
1:00pm-2:00pm Lunch

[Marie Callendars: Chicken w/ artichokes & mushrooms over pasta.

Are you noticing a pattern here?  Yeah, me too.  And I thought I was doing so well Not stopping at Starbucks every morning on my way from RTher to Work.  The good news is that lunch each of the last two days has yielded enough leftovers for two more full lunches, and I do eat leftovers (Hubby doesn’t), so if I can remember to eat that for lunch tomorrow and Friday, I’ll spend no more money on that, waste no food, and I can eat that at my desk if I want so maybe I’ll get my ass out of my work chair and back up walking again.

That’s something else that has changed (and not for the better this week).  I’m starting to fall into the non-smoker’s (72d CFT today!) bad habit of Not getting up for morning and afternoon breaks since my body is no longer sending up a cry for it’s fix every 2 waking hours.  Okay, starting this afternoon, I resume my twice daily walk around my work block).]

2:00pm-5:30pm Work
5:30pm-6:35pm Drive from Work to Home

[Up from 3:00am-4:00am: woken up by animal noises outside my open window – potty, back in bed, nose congested, use polysporin to moisturize/decongest, back in bed, drifting off as more animal noises outside, close window, pick up Kindle – next thing I know I’m hitting snooze, again, on the alarm.]

Thursday [Radiation Therapy – Day 9]:

7:00am-8:10am Drive from Home to RTher

[Big shout out to Hubby (he won’t see this, I don’t think he reads me – he figures he sees me every day, he gets all the info he needs about how this is going directly from me, and the occasional medical event he attends – meeting new doctors, surgeries, first new treatment of any kind – although he is willing to come to Any and Every medical event I Want him to come to) – last night I was complaining about the stress of trying to make it to RTher every day (comparing it to the stress of getting to a former job on time when it was a 2-hour commute – yes, that is Not a typo – One-Way,  in good weather – longer in bad weather), and this morning (as he goes to work before me and heads to just the city before the one where I work in the exact same direction/route as me), he texts me with a traffic & weather report so I know what I’m in for on my way!]

8:10am-8:20am RTher
8:20am-8:25am Gooping up/applying deodorant
8:30am-8:45am Driving from RTher to Work
8:45am-1:00pm Work
1:00pm-2:00pm Lunch

[Trip to Whole Foods: A cousin of mine (no, not the same one as has a birthday this week) posted a smoothie photo that had a blurry bottle of Synergy Kombucha in the background, so we had a little convo about that in the comments for the post, and it reminded me that I love that stuff and hadn’t had any in way too long, so I’m using my fabulous one-hour lunch today to go pick some up (along with the tomatoes and green onions that Hubby did Not pick up at the market the other night when getting “salad stuff” – okay, he’s amazing but not perfect – but then neither am I , so that’s okay.]

2:00pm-5:30pm Work
5:30pm-6:45pm Drive from Work to Home

[It’s only a little rain, people, not That big a deal!]

Friday [Radiation Therapy – Day 10]:

7:00am-8:00am Drive from Home to RTher

[Back to a regular Friday light traffic patter, with time for my weekly (yeah, I know, but that’s my story and I’m sticking to it) Starbucks treat stop – but this time I was involved in conversation with someone and forgot to pick up the new Starbucks/iTunes Freebie cards – sorry work-peeps!]

8:00am-8:10am Waiting for machine calibration – met and chatted with another patient “Dana” until my machine was ready for me
8:10am-8:20am RTher
8:20am-8:25am Post-RTher ablutions
8:30am-8:45am Drive from RTher to Work
8:45am-1:00pm Work
1:00pm-2:30pm Lunch

[I get an extra-long one today ‘cuz after building in ‘life is screwed up’ time into when I scheduled my RTher, I now end up with extra already-worked time on Fridays sometimes, and I know work doesn’t really want me taking off early (tho that’s what I would prefer to do), so I’m just tacking it onto lunch instead.]

2:30pm-5:30pm Work
5:4opm-6:45pm Drive from Work to Home

[Yeah, got caught up in reading my, well, personal email at the end of my workday and ended up staying 10 minutes late!

Additional Tasks Accomplished This Week:

– walked at least 20 minutes um, some days
– blogged
– VOTED!
– wished my cousin Happy Birthday on Facebook
– paid some bills
– cleaned up bedroom, put clothes away
– gave $100 to a fund for the family of a co-worker of Hubby’s who died on the job this week  😦
– remembered to write check for every other week housecleaner And actually leave it at home for her

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Schedule: Week of October 29-November 2, 2012

Monday [Times after 8:30am approximate – I was out of my routine & not keeping strict track] [Radiation Therapy – Day 1]:

7:30am-8:30am Drive from Home to Disney Family Cancer Center to straighten this out before my appointment at 11:30am [Meet Hubby and Mom to back me up/help me out]
8:30am-9:00am Find the CEO of St. Joseph’s Hospital – Request meeting with same – Get escorted to his office

9:00am-9:10am Throw Dr. Rex Hoffman under the bus with the CEO of the hospital at which he works
9:15am-10:15am Eat breffast w/ Mom & Hubby in the hospital cafeteria – nearly free with coupons from the hospital CEO [wasn’t that nice of him?]
10:30am-11:15am Visit with Nurse Navigator [to make sure I was still welcome in her office, since I bcc’d her on the email in this post – and I was  🙂 – nice chance to catch up] [As I’m walking across the way to the other building I see Dad driving up to join my backup posse]
11:15am-11:45am Wait for my 11:30am first radiation therapy appointment to begin [Dr. Hoffman being the only ROnc in the office today, my care will be changed to another doctor tomorrow]
11:45am-12:30pm First Radiation Therapy appt [w/ Mom, Dad and Hubby as backup]
12:30pm-2:30pm Drive Hubby to his truck [parked and left at a local Starbucks this am to save 1 parking fee at doctor’s appointment] – went w/ Hubby in his truck to a vape store so he could test some flavors [leaving my car in the very same Starbucks parking lot ‘cuz it had already been a tough day and I just wanted to be with him for now] – going back to pick up my car
2:30pm-3:30pm Drive from Starbucks to Home [with 1 stop at a local deli for chicken noodle soup w/ a dry matzo ball on the side – my soul needed it]

Awake in the middle of the night from about 2:15am-4:00am.

Tuesday [Radiation Therapy – Day 2]:

7:00am-8:00am Drive from Home to ROnc
8:00am-8:15am RTher [with Mom in tow since I was seeing the new doc this morning – I try Always to have an extra pair of ears around during doctor’s visits – countless times already someone else has heard something I did not because I get stuck on something and check out of the conversation for some period of time]
8:15am-8:35am Wait for appointment with new ROnc
8:35am-8:55am Appointment with new ROnc
9:00am-9:15am Drive from ROnc to Work
9:15am-1:00pm Work
1:00pm-2:00pm Lunch [a whole hour!  two weeks in a row!  got a couple errands done.  :)]
2:00pm-5:30pm Work
5:30pm-6:50pm Drive from Work to Home [with 1 stop to pick up last minute stuff for work pot luck lunch tomorrow and to have a bowl of candy for kids trick-or-treating in the office, and 1 stop to pick up more meds]

Wednesday [Radiation Therapy – Day 3]:

7:00am-8:05am Drive from Home to RTher
8:05am-8:15am RTher
8:15am-8:35am Waiting to see ROnc [to discuss noticeable side effects Nobody led me to expect I’d have so soon – after Two treatments?!]
8:35am-8:55am ROnc appointment
9:00am-9:15am Drive from ROnc to Work
9:15am-12:30pm Work
12:30pm-2:00pm Halloween Pot Luck Lunch @ Work [& visiting with my work friend’s 18-month-old granddaughter dressed as the cutest pirate ever!]
2:00pm-5:30pm Work
5:30pm-7:00pm Drive from Work to Home [With 3 stops on the way: (1) put gas in the car; (2) Costco – this is a kamikaze run to grab a sweater I’d already bought 2 of (in different colors) in yet a Third color! – Hm, parking lot very empty, what’s up with that?  Oh, right, Halloween – score on the empty Costco!; and (3) the pharmacy Again to pick up the Rx I dropped off last night, and drop off 2 more I got this morning to help deal with side effects of RTher.]

Woke up enough to look at the clock at 3:25am, but managed to get back to sleep without peeing, eating, reading, turning on a light, or even getting out of bed (I think)

Thursday [Radiation Therapy – Day 4]:

7:00am-7:55am Drive from Home to RTher [I actually decided to go all by myself this morning, just like a big girl – and one of my RThers asks where my Mom is and gives me grief about not bringing her with me, for her sake!  (This comes from his understandable perspective of a father with an only child.  Tomorrow I’ll gently remind him that the person at the center of our joint drama isn’t my Mom, it’s me.)  But I did tell him he’d get to see my Mom on Mondays, since Mom will join me on doctor appointment days.]
7:55am-8:05am RTher
8:05am-8:15am Did the PTher I have to do myself to deal with my side effects, and hyper-moisturize the area we’re charring each weekday to hopefully help prevent, well, peeling, weeping, and sloughing of the skin.  🙂
8:20am-8:35am Drive from RTher to Work
8:35am-1:00pm Work
1:00pm-2:00pm Lunch

So, with the start of RTher, apparently comes a new lunch schedule.  Whereas before, I was taking short lunches to make up time taken by randomly-occurring doctor’s appointments, I deliberately made the RTher appointments early enough so that most days (even if slightly delayed by traffic or some other time issue), they would Not interfere with work (I didn’t schedule them so they wouldn’t interfere with work only if timing were perfect every day – this is traffic in greater Southern California I’m dealing with after all).  But that means that most (non-ROnc/non-PTher days) I’ll get to work Early.  Therefore, most days I’ll not only get the hour lunch that used to be my norm, but even after counting the ROnc and/or PTher days when I’ll still be in late, I may even get extra-long lunches on Fridays from getting to work early and storing up some extra work time other days of the week!  We’ll have to see how that works out – or am I just being overly-optimistic now?

2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday [Radiation Therapy – Day 5]:

7:10am-8:05am Drive from Home to RTher [With 1 stop @ Starbucks for the weekly coffee treat – yeah, it’s not my only one this week either, I know]
8:10am-8:20am Rather
8:25-8:40 Drive from RTher to Work
9:45am-1:00pm Work
1:00pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day (um, except Monday)
– blogged
– managed to carve out a whole hour for lunch at least one day
– threw my doctor under the bus and replaced him with a new her doctor
– used my hasn’t-happened-in-several-months one-hour lunch to practice some minor retail therapy
– rearranged physical therapy appointments to conform with my new doctor’s schedule, shared same with Hubby, Mom, Dad and work
– actually participated in a Holiday Party – the Halloween Pot Luck Lunch at work

Copyright Ridingthebcrollercoaster.com 2012 All Rights Reserved.

Schedule: Week of October 22-26, 2012

Monday:

7:00am-8:00am Drive from Home to ROnc
8:20am-9:10am CT Simulation for Radiation Therapy, including getting tattoos
9:10am-915am Drive from ROnc to Starbucks to get coffee
9:25am-9:40am Drive from Starbucks to Work
9:40am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Tuesday:

8:05am-9:15am Drive from Home to Work [With 1 stop to get gas for the car]
9:15am-1:00pm Work
1:00pm-2:00pm Lunch [Shopping at H&M – got a few good lightweight t-shirts for winter layering & 1 scarf] [Oh, and the first time I’ve taken an hour for lunch maybe since I came back to work after my surgeries on September 10, 2012.]
2:00pm-5:30pm Work
5:30pm-6:50pm Drive from Work to Support Group [Jack in the Box dinner & Starbucks coffee in the car on the way]
7:00pm-8:30pm Attend Support Group
8:30pm-9:10pm Drive from Support Group to Home

Wednesday:

8:25am-9:25am Drive from Home to Work [I actually made a conscious decision this morning to accept being late to work so I could clean up my bedroom (clothes needed putting away, my bag needed to be fully unpacked from my overnight stay at Mom’s last week) – to take some time all for myself to do something I wanted to do, even if I could only steal a few minutes.]
9:00am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by a few minutes of ‘me time’ this morning]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Thursday:

7:10am-8:20am Drive from Home to Physical Therapy [Why can I not get my ass out of the house on time to make it to physical therapy on time?]
8:20am-9:00am Physical Therapy
9:00am-9:20am Drive from Physical Therapy to Work [Driving through Jack in the Box on the way to pick up a Platter for breakfast – OK, I’m aware I’ve now gotten fast food twice already this week, and it’s only midday Thursday.  Apparently, I’m wearing down a bit this week (well, no wonder, see “Dr. Rex Hoffman – Office Visit – October 22, 2012“) and putting healthy food in my face is something that is suffering for it.  Hopefully, I can find some energy somewhere to fix that.]
9:20am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday:

8:10am-9:15am Drive from Work to Home [With 1 stop @ Starbucks for the weekly coffee treat – don’t tell anybody it’s my third Starbucks this week!]
9:15am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Costco
6:30pm-7:15pm Shopping at Costco [Including a 2nd phone call from Dr. Rex Hoffman which, after starting to feel better after posting last night and therefore looking forward to an actually relaxing weekend unlike the last one, ruined this one too, See “Dr. Rex Hoffman – Phone Call – October 26, 2012”]
7:15pm-7:30pm Drive from Costco to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day
– blogged
– managed to carve out a whole hour for lunch at least one day
– used my hasn’t-happened-in-several-months one-hour lunch to practice some minor retail therapy
– cleaned up the bedroom
– wrote a scathingly honest email to Dr. Raul Mena, Medical Director of Cancer Services at Disney Family Cancer Center at Providence St. Joseph Hospital in Burbank [Hm, after going anonymously under the radar and promising pseudonyms, I’m blatantly and completely naming names all of a sudden – Please See Rule -1 and Rule 0 and “Dr. Rex Hoffman – Office Visit – October 22, 2012“]
– remembered to write & leave a check for our every-other-week housecleaners