Radiation Therapy Journal – Day 4 – Thursday November 1, 2012

This is the first time I’m deciding to go to RTher all by myself – you know, like a big girl.

Treatment Notes:

– my RTher asked where my Mom was, why wasn’t she here?  Really?  I finally decide to treat this thing like it’s no big deal in the hope that acting as if will actually make it feel like no big deal (I’m just coming in for some quick RTher and then I’m off to work – no biggie, right?) and he asks me where my Mom is. . .facepalm.  Well, he knows I’m an only child (from talking to my Mom previously), and he also has only one child, so he’s asking from his/her POV.

This actually got me thinking – I went home and promptly asked Mom, Dad and Hubby if they were as involved with my treatment as they want to be, for themselves.  I figured I prolly knew the answer but I asked anyway, separately, each of them.  I’m not sure that I would have changed anything if they had said “no” but thankfully they all answered “Yes.”  So, tomorrow I’ll let Iggy know that I asked, they said yes, and gently (he really is a good guy) remind him that it’s about me first, before it’s about them.

– a little warmth this morning when they did the down-from-above angle

Side Effects:

– late afternoon fatigue – about the time I usually take my walk around the block – 4:00pmish.  I’ll make it through, but tired enough that my eyes are starting to hurt and there is actual yawning.  I’ve been told to expect serious fatigue, at some point before the end of treatment, which could last up to several months after treatment ends (since things are still ‘cooking’ in there – nice, I know).  I’m hoping this isn’t that, but just reaching the end of my usual weekly energy allotment.  Of course my RSurg thinks my body is, in her word, hyper-reactive (and no, for those who are thinking it, she didn’t mean that in the good way – get your mind out of the gutter just for a minute, k?), so who knows?

– intermittent breast pain – some near the hematoma I still have lateral to the nipple and some from the nipple incision, which is now showing almost a pretty cherry red – if I do lose my skin integrity during this, I’m afraid that may be the first spot to go.  Thought about using ice, again, but didn’t – I was too damn tired to deal with it.  Doesn’t make sense, right, and yet it’s true.

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Schedule: Week of October 22-26, 2012

Monday:

7:00am-8:00am Drive from Home to ROnc
8:20am-9:10am CT Simulation for Radiation Therapy, including getting tattoos
9:10am-915am Drive from ROnc to Starbucks to get coffee
9:25am-9:40am Drive from Starbucks to Work
9:40am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Tuesday:

8:05am-9:15am Drive from Home to Work [With 1 stop to get gas for the car]
9:15am-1:00pm Work
1:00pm-2:00pm Lunch [Shopping at H&M – got a few good lightweight t-shirts for winter layering & 1 scarf] [Oh, and the first time I’ve taken an hour for lunch maybe since I came back to work after my surgeries on September 10, 2012.]
2:00pm-5:30pm Work
5:30pm-6:50pm Drive from Work to Support Group [Jack in the Box dinner & Starbucks coffee in the car on the way]
7:00pm-8:30pm Attend Support Group
8:30pm-9:10pm Drive from Support Group to Home

Wednesday:

8:25am-9:25am Drive from Home to Work [I actually made a conscious decision this morning to accept being late to work so I could clean up my bedroom (clothes needed putting away, my bag needed to be fully unpacked from my overnight stay at Mom’s last week) – to take some time all for myself to do something I wanted to do, even if I could only steal a few minutes.]
9:00am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by a few minutes of ‘me time’ this morning]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Thursday:

7:10am-8:20am Drive from Home to Physical Therapy [Why can I not get my ass out of the house on time to make it to physical therapy on time?]
8:20am-9:00am Physical Therapy
9:00am-9:20am Drive from Physical Therapy to Work [Driving through Jack in the Box on the way to pick up a Platter for breakfast – OK, I’m aware I’ve now gotten fast food twice already this week, and it’s only midday Thursday.  Apparently, I’m wearing down a bit this week (well, no wonder, see “Dr. Rex Hoffman – Office Visit – October 22, 2012“) and putting healthy food in my face is something that is suffering for it.  Hopefully, I can find some energy somewhere to fix that.]
9:20am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Friday:

8:10am-9:15am Drive from Work to Home [With 1 stop @ Starbucks for the weekly coffee treat – don’t tell anybody it’s my third Starbucks this week!]
9:15am-1:30pm Work
1:30pm-2:00pm Lunch [Short – to make up work time stolen by medical appointments]
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Costco
6:30pm-7:15pm Shopping at Costco [Including a 2nd phone call from Dr. Rex Hoffman which, after starting to feel better after posting last night and therefore looking forward to an actually relaxing weekend unlike the last one, ruined this one too, See “Dr. Rex Hoffman – Phone Call – October 26, 2012”]
7:15pm-7:30pm Drive from Costco to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day
– blogged
– managed to carve out a whole hour for lunch at least one day
– used my hasn’t-happened-in-several-months one-hour lunch to practice some minor retail therapy
– cleaned up the bedroom
– wrote a scathingly honest email to Dr. Raul Mena, Medical Director of Cancer Services at Disney Family Cancer Center at Providence St. Joseph Hospital in Burbank [Hm, after going anonymously under the radar and promising pseudonyms, I’m blatantly and completely naming names all of a sudden – Please See Rule -1 and Rule 0 and “Dr. Rex Hoffman – Office Visit – October 22, 2012“]
– remembered to write & leave a check for our every-other-week housecleaners

Schedule: Week of October 15-19, 2012

Monday:

7:10am-8:15am Drive from Home to Physical Therapy
8:15am-9:05am Physical Therapy
9:10am-9:25am Drive from Physical Therapy to Work
9:25am-1:30pm Work
1:30pm-2:00pm Lunch [Put gas in the car – bought lottery tickets]
2:00pm-5:30pm Work
5:30pm-5:45pm Drive from Work to Acupuncture
5:45pm-6:45pm Acupuncture
6:45pm-7:45pm Drive from Acupuncture to Home

Tuesday:

8:00am-9:00am Drive from Home to Work
9:00am-1:30pm Work
1:30pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home [While listening to pre-debate show and debate]

Wednesday:

Woke up at 4:30am – Could not get back to sleep before 6:00am alarm.

8:00am-9:00am Drive from Home to Work
9:00am-1:30pm Work
1:30pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:30pm Drive from Work to Home

Thursday:

8:00am-9:25am Drive from Home to Work
9:25am-1:30pm Work
1:30pm-2:00pm Lunch
2:00pm-5:30pm Work
5:30pm-6:40pm Drive from Work to Mom’s

[Slept at Mom’s to save 1-1/2 hrs driving time Friday morning – not my house, not my bed, couldn’t fall asleep ’til almost 11pm (way past my bedtime)]

Friday:

8:35am-8:55am Drive from Mom’s to RSurg
9:00am-9:45am Appt with RSurg who released me to begin radiation treatments on October 29, 2012 [which means I get my very first tattoos (that I never wanted) next Monday October 22, 2012]
9:50am-10:40am Drive from RSurg to Work [with 1 stop for my usual Friday Starbucks treat]
10:40am-2:05pm Work
2:05pm – 2:35pm Lunch
2:35pm-5:30pm Work
5:30pm-6:25pm Drive from Work to Home

Additional Tasks Accomplished This Week:

– walked at least 20 minutes each day
– blogged
– paid bills
– did laundry
– completed AFLAC claim forms