Dr. Rex Hoffman – Office Visit – October 22, 2012

First things first, I have No qualms at all about the level and quality of medical care Dr. Rex Hoffman of the Disney Family Cancer Center at Providence St. Joseph’s Hospital in Burbank, California provides.

But medical care and patient care are not the same thing.

Also, this is my own personal opinion of my own personal experience including quotations from conversations I, myself, participated in (which, in accordance with California law – were Not recorded, so my quotations are recollections to the best of my ability).

I absolutely allow for the fact that other people may have other experiences with this doctor, and in fact, fervently hope they do!

And now on to my visit with Dr. Rex Hoffman at 8:00am this past Monday October 22, 2012, which has so far (midday Thursday as I begin this blog post and finished it Friday midday) colored my Entire week, as told through my email to the Medical Director for Cancer Services of the same medical facility:

Dr. Mena Attachment A:

What Part of ‘I Work For a Living – Because I Have To’ is Unclear?

Dr. Mena Attachment B:

Dr. Mena Attachment C:

So, after finally finishing writing, and sending, the email to Dr. Mena – I felt better.

It wasn’t just the writing, but the actual sending, that let me release at least some of what I had been holding on to all week.

We’ll see what this weekend feels like and what I decide to do on Monday – show up for treatment (of course it just so happens that Dr. Hoffman will be at a national conference in Boston when I begin my treatment on Monday – and I would not have known this if I hadn’t made a stink this week – but it’s a bit tough to be there to enforce the policy when he’s 3000 miles away – hehehe), or punt and start from scratch to find somewhere else to have the treatment.  I’ll let you know next week.

SNL (1975-1980, 1985-Present): October 20-21, 2012

Who gets the reference?

This has been a rough one.  As soon as I got home from work on Friday, and mentally left this past workweek behind me, there was only one thing I could see ahead – Monday and the tattoos I’d have to get for my radiation therapy.  I’ve never wanted a tattoo.  Please see “My New Ink – The Tattoo I Never Wanted.”

Saturday:

– coffee
– was interviewed by S (with interview trainee L observing) as part of the Mya Research Project being conducted by UCLA to help tailor future resources to better meet women’s emotional needs in the first year after diagnosis – for those who come after me.
– blogging
– reading
– watching TV
dinner

Sunday:

– coffee
– blogging
– thinking about tattoos
– brunch @ Thelma’s Morning Cafe
– errands [vape store, tattoo shop]
– coffee from Starbucks
– dinner & Sepang, Malaysia Moto2 on tv

SNL (1975-1980, 1985-Present): October 13-14, 2012

Who gets the reference?

Saturday:

Welcome to my Saturday!   – Your Loss, I’m Awesome on Facebook

– coffee
– blogging
– brunch
– napping
– blogging
– watching tv
– dinner

Sunday:

– coffee
– watching tv
– brunch @ Lazy Dog Cafe & bought “Bark for the CURE” t-shirts for Hubby & me

Now please understand I am Not into the stupid pink ribbon everywhere and on everything, But I thought the way they did this was very cute – and 100% of proceeds go to the Susan G. Komen Foundation, for those who come after me.

– marketing to the tune of $250+!  (It’s been a while since we did more than an emergency run for the basics.)
– napping
– dinner while watching MotoGP Motegi

I’ll Take Red Please

My favorite color is Navy Blue (seen the background color of this blog, for instance?  Guess how I chose my theme.).  I was born in May, so my birthstone is Emerald.  But (other than diamonds, of course) my favorite gemstone is the Sapphire because . . . it is navy blue.

All of a sudden, about 3 months or so ago, I started wanting to wear a lot of red, literally all the time.  I was diagnosed on July 5, 2012 with Breast Cancer.

What does being diagnosed with breast cancer have to do with wearing red?

And why red, as opposed to any other color?

The Chinese culture contains the belief that the color red signifies: good luck, power, strength, long life, vitality, happiness, good fortune, joy, power to ward off evil spirits, energy, determination, vigor, willpower, courage, and triumph, among other things.

Don’t take my word for it.  This information is available all over the internet.  Here are just a few:

Nationsonline.org
Wikipedia.org
WeirdAsiaNews.com
BillionDollarIncome.com

Personally, with what I’m up against, I’ll take all of that stuff I can get.

When I said above that I wanted to wear red all the time, I meant 24 hours a day/7 days a week.  That meant I could put red jewelry a couple of places –

My navel (it was already pierced, so this was just a matter of hitting the nearest mall cart and buying the color I wanted, especially since I never take this completely out, only change them from time to time); and

My thumb – where I could simply look down, see the red and tap into that positive vibe anytime I wanted.

I decided, almost upon diagnosis, that this breast cancer thing was Not going to steamroll me.  Hence, I’ve been making trouble all over town.  🙂  But I digress.

Much of what I have to do to fight cancer is, essentially, out of my control.  Not doing it, or not doing some part of it, or not doing something like it, is simply not an option – not if I want the other 40 years my genes promise me (despite various cancers all over my family, my grandparents and great-grandparents on both sides have lived into their late-eighties and nineties with full mental faculties and most physical faculties – so that’s what I’ve grown up to expect I get too), and the alternative sucks.

To balance that feeling of being out of control, I take control and deliberately make decisions about cancer-related things where doing so does not put myself at medical risk, or is not otherwise unreasonable or stupid.  Notice that someone else’s convenience does not enter into my equation.  I do not visit Any of my medical professionals for their convenience, and I find myself often (politely, when I can) reminding them of that.  One thing I can control is what color gauze is used on me when necessary (which is fairly often given my extreme allergy to tape – yes, even Tegaderm), so I choose red.

I figure I’ll use everything I can to sway this fight in my direction, as long as it does not harm anyone.

The other thing I love about my red self-adherent gauze is I can wear it when I can’t wear any of my red jewelry, or in fact, any jewelry at all – when I have surgery.  And to make damn sure I get my red gauze, and to make it as easy on my caregivers as possible (so I prevent even the possibility of a conflict, since I have the means to do so), I bring my own.  I’ve had two surgeries already, and I may be having more on the other side of my radiation therapy.  So far, everybody’s been perfectly happy to use the gauze I bring, particularly after they ask me why red only, and I tell them.  It’s a win-win situation!  🙂  There are only those few minutes between taking All my jewelry off and having that first IV tied down with my red gauze that I don’t have any red on my body (well, except for my red toenail polish of course! – there’s always a way!), and by the time they do anything really serious, like make me unconscious or cut me open…I know I’m covered.

In fact, I’ve found a few items, in addition to red self-adherent gauze, that have so far made my journey easier.  As soon as I can source and price the components, I plan to offer a “You’ll Get Through This” Pack on a new page: “ToLiveWithByJ”